There are several aneurysm survivor’s message boards/support groups out there online. While I was still in the hospital, I found it very comforting to talk to someone who was going through the same thing. If there were a local group here in Maine of people who survived aneurysms, I’d probably be going to that as well.
But, for all the help, comfort and positive reinforcement I have been given on the message board I belong to, it can also be a bit scary. There are many survivors who have gone through, and continue to go through much worse after-effects and problems than I have. For those folks, I don’t know what to say. I can’t imagine living with multiple unruptured annies. Little time-bombs waiting to go off unless they can be
operated on. I had one…I just didn’t know it.
There are people who have gone through less than me as well. Some are lucky enough to have found their annies during a scan BEFORE they rupture and have the surgery. We all go through some of the same symptoms, but no two stories are exactly alike, which causes me some upset.
Although my last MRI looked good, I’m worried that something else will show up on my angiogram in April. Chances are it won’t, but because I read a lot of stories of people who go back for a check up and something shows up, it has caused some concern. I hate to worry about something that may not happen, and probably won’t, but reading all the stores makes me think about it, which in turn….well, it makes me worry. I don’t lose sleep over it, I just think about it and have a twinge of concern. I’m sure as soon as the date for my angiogram gets closer, I WILL think about it more.
Sometimes I just need to step away from the message aboard for a few days and remember how lucky I am and not read the horror stories. I know that seems horribly selfish, but I need to think about me now and what I have accomplished and not take a step back and let worry consume me. So far, it hasn’t, but who knows what’ll happen down the road. Hopefully nothing! And I need to concentrate on that.
Survivor’s guilt hits me when I read the stories of others who are still suffering so much after their annies have ruptured. Why am I different from them? What led my annie to bleed less than others? Again…we’re all different, but the common denominator, and the reason I keep going back to the boards, is that we’re all survivors! God bless everyone who’s had an annie…ruptured or not.