Our brief appearances on local television raising brain aneurysm awareness in Maine.
For many who attended our 10th annual KAT-Walk for Brain Aneurysm Awareness yesterday, they probably did not catch the significance of a special moment for our family personally.
Because this was the 10th anniversary of the KAT-Walk named in honor of Kim, Dave’s niece who died from a ruptured brain aneursym, there were some special moments dedicated to Kim’s memory yesterday. One of those moments was the start of the walk.
The start of the FIRST KAT-Walk in 2009 was lead by Dave, myself, Kim’s mom Nancy, and Kim’s pug, Bella. Bella has been there to lead every KAT-Walk since Kim’s death, except yesterday because she passed away earlier this year after a long battle with illness.
A month ago, our brain aneurysm group was lucky enough to be a featured community organization at a Portland Sea Dog’s game. The Sea Dogs are a double-A minor league team for the Boston Red Sox. As a part of our efforts that night, we had asked if their mascot, Slugger the Dog, could attend our KAT-Walk & Karo-5k to add some special local flavor.
Slugger showed up and had a lot of fun with those in attendance. Earlier in the week, I had suggested we start the walk with Slugger taking the place of Bella since it was the 10th year of the walk. Dave thought it was a great idea and Slugger helped Nancy and I hold the original banner created by Dave for the first KAT-Walk to start the walk.
Carrying that banner with Nancy was sad, but also a proud moment because of the work we have done in Kim’s name and for those touched by brain aneurysms.
Times are changing. People move away. Pets pass away. Our committe members are getting older. It gets more difficult to find willing, and physically able volunteers each year to produce the kind of event we want to provide the brain aneurysm community. But the hard work is worth it when hundreds of people show up to support each other and our efforts to raise awareness.
THANK YOU to everyone who attended and/or donated this year. We could not do it without YOU! And thank you to Slugger and the Portland Sea Dogs, for providing some comedic relief and a helping paw in a special moment.
At work today, as we were discussing a return of flower bulbs to the catalog, we were looking at older catalogs when we sold bulbs previously. For about three or four years we sold Narcissus and Tulips. As I was looking through one of the older catalogs, I noticed a major typo! The word Narcissus, was spell with an “M”!
My first thought was embarrassment because I would have been the one who typed that and then I was laughing because…well, it was funny! Obviously our copywriter/editor/proofreader extraordinaire missed it, and probably many others did too. A group effort!
Then I realized the year of that particular catalog – 2007. Which means I was producing it in 2006. Which means, that’s the catalog I wasn’t able to complete because I had my ruptured brain aneurysm in October of that year.
It was NOT easy for those left behind to complete the catalog that year. They did bring another graphic artist in, but it must have been horribly difficult for her to pick up where I left off and not know how I pulled in information from our database, nor any of the processes, or where I had left off. I seem to remember I was able to tell my husband to tell them a few things, but beyond that, they were on their own.
Seeing this typo brought back a lot of memories of that period and also of Jeanne, our proofreader. She was brilliant at her job and worked tirelessly to make sure the information that went out of the building to customers was accurate. So, seeing this typo, I wanted to contact her immediately, because I know she would have felt the same way about it as I did.
Sadly, I’m unable to contact her because she passed away almost two months ago from cancer. Even though she retired two years ago, I always knew I could reach out to her and she’d understand. I also know she’d be some pissed that this typo went out to customers, but she would have also stated that it was a stressful time for everyone while I was out and that “shit happens”. Yes, it does…so I look upon this little typo as a badge of honor. Jeanne and I BOTH survived that catalog season. Marcissus be damned. You can be sure in this, my 17th year of catalog design, I’ll spell it correctly!
Dave and I are always thinking….thinking about brain aneurysms. They have been a part of our daily lives since 2006. We raise money, we produce print pieces, Dave creates banners and maintains all of our Facebook posts. I do Instagram and Twitter posts and maintain the website. We help with the monthly support group and we’re always trying to raise awareness for brain aneurysms.
So, it was odd when after our first real vacation in five years, I realized that we never discussed brain aneurysms in that three week period. I think the only time I thought about my aneurysms was on the flights, but for the most part…it was a three-week break from brain aneurysms.
It was a very welcome break and one we needed to recharge and discover the world outside of our little Maine bubble. And we loved it! It wasn’t until the last week of the trip we even turned on a TV and it wasn’t to a news channel but local UK home & garden programming.
Because we were gone last month, we missed last month’s brain aneurysm support group meeting. Tonight we attended as usual and welcomed some new faces. I’m again reminded at the important work we are doing. And I’m also reminded that what’s most important to us (Dave and I) is the human contact and helping others…not the money. Yes, the money is important and it’s helping to fund important research, pay for event costs, and student scholarships, but it’s that one-on-one support and comfort we can give to others that is certainly the most rewarding.
The break was great and it was needed, but I’m pleased with how Dave and I are spending a good deal of our time…helping others when and where we can.
Six years ago next week, we said goodbye to my sister Dori after she suffered a ruptured brain aneurysm on Mother’s Day and there was no hope for recovery. The Mother’s Day & Memorial Day holidays always bring it all back for me.
Dori was the only immediate family member to come & visit me in Maine since I moved here in 2000. Two of those trips were for fun and two of the other trips were for MY brain aneurysms. During one of those trips she left a hair barrette behind when staying at our house. I remember letting her know she had left it and asked her if she wanted it mailed back. She told me to keep it.
Well, I’m so glad I DID keep it. I realized this week It’s one of the very few things of Dori’s that I have. I asked for one of her garden fairies at her memorial service and I set it out each year. I knew she loved these beautiful statues so there certainly is a sentimental attachment to them. But how can a simple plastic & metal hair barrette fill me with emotions?
This barrette meant nothing to Dori. She used it and it held her long hair. That’s it. And I’m pretty sure when I discovered the barrette in our guest room that it held a strand or two of her hair. It’s ironic since the last time I saw her was in the hospital and all of her hair had been shaved off for surgery to insert a drain.
I’d prefer to remember her with that long thick hair and, ever so slowly, the painful memories of seeing her in the hospital are being replaced with happier, healthier ones and I DO wear that barrette.