It’s Brain Aneurysm Awareness Week

Hello, I’m Heidi and I’m a survivor. I’m one of the lucky ones. The statistics are quite sobering and I am trying to do my part in raising brain aneurysm awareness this week.

A diagnosis of an aneurysm isn’t necessarily a death sentence, nor should it be viewed as a “ticking time bomb”. I would think a person should consider themselves lucky. Lucky that it was discovered. Lucky that they have options. Lucky that THEY have the power to do something and lucky to be alive. The medical procedures available today allow a person to LIVE with an aneurysm, not necessarily die because of one. Those are much better statistics.

Understanding the signs and symptoms (if you have any) as well as diagnosis with early screening are vital to survival.

I have two first cousins who had aneurysms. If I had been more informed to the risks of hereditary aneurysms, I may have found my aneurysm before it ruptured. I now have another aneurysm, but I know so much more as a result of the first one that I have a fighting chance….but only because I survived the initial rupture.

Like I said…I’m one of the lucky ones. Please help us raise awareness.

Happy 5th Annie-Versary to Me!

Open this entry to view my anniversary video.

5th Annie-Versary

3rd Annie-Versary

I “celebrated” my 3rd annie-versary of my rupture last Monday. It’s been a rough month with putting Kim to rest so close to my own anniversary of my rupture and things being very stressful at work. I think Dave and I just need some time away from everyone and everything.

BUT, I have to continue to remember what I’ve been through and how lucky I truly am. Also how lucky I am to have Dave with me.

Even though it has been three years,mthere are so many things about that time period that remain so fresh in my mind. Some good, some bad and even after three years, there are still things that effect my head. I still get very tired. I still have head pain when I cough hard or sneeze hard. My eyes still have trouble in stores that have a lot of enclosed, small aisles with tons of items in them.

One interesting “side effect” I noticed is that I sleep more soundly. I was always a VERY light sleeper prior to the rupture. Now, once I’m asleep…I’m out! The furnace doesn’t wake me up when it pops on. Only the cats seem to wake me when I don’t want to be awakened…as the did that cool October morning in 2006 shortly before the rupture.

I’ve had trouble dealing with Kim’smdeath over my survival of my rupture. The questions “Why her and not me” is a question that won’t ever be answered. And I supposed I have to be okay with that. It’s a struggle sometimes.

It’s been a tough year for Dave and I, but I look forward to making more plans for our wedding in June. Something we’re looking forward to with great anticipation.

Devastating Couple of Weeks

A few days after Christmas, we received news that Dave’s niece, Kim, had died of a massive ruptured brain aneurysm. It was bad enough we lost her at the all-too young age of 32, but once we found out the cause of death, it threw a level of other issues at me because I too, had suffered a ruptured aneurysm.

Why did mine rupture the way it did and why didn’t I die? Why? Why? Why? All questions one can’t answer. I have my own “whys”, her mother has her own “whys” as do many other people. Like most undetected annies, Kim didn’t know she had it and as far as everyone knew, she was very healthy and living an active, if not stressful, life at the time of her death.

There are so many people who survive ruptures, so many who do not and even the consistent threads that DO link some of these people together such as smokers, hereditary, age, women….aren’t consistent enough for people to instantly know they have an annie. Some smokers who have a history of annies in their families, never get aneurysms, while other families have multiple deaths and ruptures in their families.

It was just the irony of Kim having one when she was not a blood relative of mine and didn’t display any of the so-called “symptoms” that may, or may not, occur from an annie. She did suffer from migraines, but so do millions of other people and they do not have aneurysms, so one can’t say that was a “sign” for sure. My mother had migraines, both my sisters do, my aunt and myself. I’ve had two first cousins with annies and myself.  I wish my sisters and niece would get CTA’s. At least if you KNOW you have one, you have a fighting chance of surviving. If you don’t know you have one, and it ruptures, chances of survival decrease the older you get and obviously, the severity of the rupture, location and size of the aneurysm. So many factors
come in to play and it’s different for every person.

I started to look at it like suffering with an annie was something special and because the brain is effected, it’s just that much more serious than anyone else’s maladies, but truthfully, it’s no different than suffering a catastrophic heart attack or stroke, or being hit by a car. You may, or may not survive. Many are lucky, many are not and trying to figure out the “whys” can eat you alive.

As Dave says…”It is what it is.” and often times we just have to accept what “is” and move on no matter how terribly difficult it can be without those we love beside us.

Also today, I get news that my cousin Jennifer, who had been fighting a brain tumor since 1999 is close to death’s door. How painful it has been to read her brother’s posts on The Caring Bridge website about her battle and how terrible is must be for them to watch her deteriorate and not be able to help her in anyway. I know how helpless one can feel after watching my own father fade away from us for months. Jennifer has been so strong with her battle and always gave others strength. I pray God gives her entire family strength and comfort now as we wait for news.