Devastating Couple of Weeks

A few days after Christmas, we received news that Dave’s niece, Kim, had died of a massive ruptured brain aneurysm. It was bad enough we lost her at the all-too young age of 32, but once we found out the cause of death, it threw a level of other issues at me because I too, had suffered a ruptured aneurysm.

Why did mine rupture the way it did and why didn’t I die? Why? Why? Why? All questions one can’t answer. I have my own “whys”, her mother has her own “whys” as do many other people. Like most undetected annies, Kim didn’t know she had it and as far as everyone knew, she was very healthy and living an active, if not stressful, life at the time of her death.

There are so many people who survive ruptures, so many who do not and even the consistent threads that DO link some of these people together such as smokers, hereditary, age, women….aren’t consistent enough for people to instantly know they have an annie. Some smokers who have a history of annies in their families, never get aneurysms, while other families have multiple deaths and ruptures in their families.

It was just the irony of Kim having one when she was not a blood relative of mine and didn’t display any of the so-called “symptoms” that may, or may not, occur from an annie. She did suffer from migraines, but so do millions of other people and they do not have aneurysms, so one can’t say that was a “sign” for sure. My mother had migraines, both my sisters do, my aunt and myself. I’ve had two first cousins with annies and myself.  I wish my sisters and niece would get CTA’s. At least if you KNOW you have one, you have a fighting chance of surviving. If you don’t know you have one, and it ruptures, chances of survival decrease the older you get and obviously, the severity of the rupture, location and size of the aneurysm. So many factors
come in to play and it’s different for every person.

I started to look at it like suffering with an annie was something special and because the brain is effected, it’s just that much more serious than anyone else’s maladies, but truthfully, it’s no different than suffering a catastrophic heart attack or stroke, or being hit by a car. You may, or may not survive. Many are lucky, many are not and trying to figure out the “whys” can eat you alive.

As Dave says…”It is what it is.” and often times we just have to accept what “is” and move on no matter how terribly difficult it can be without those we love beside us.

Also today, I get news that my cousin Jennifer, who had been fighting a brain tumor since 1999 is close to death’s door. How painful it has been to read her brother’s posts on The Caring Bridge website about her battle and how terrible is must be for them to watch her deteriorate and not be able to help her in anyway. I know how helpless one can feel after watching my own father fade away from us for months. Jennifer has been so strong with her battle and always gave others strength. I pray God gives her entire family strength and comfort now as we wait for news.

It’s Strange

It’s strange…16 months after my rupture, as I’m trying to get to sleep last night, for some reason, I started to think (or perhaps it was dream) of the morning it occurred again. Not a clue why it popped into my head. Perhaps it’s because of those nagging headaches I still get at night or first thing in the morning. Mostly of which, I’m sure are sinus.

Only this time, I wasn’t thinking about what happened here at home as I usually do, or at the hospital, but at work. I don’t recall hearing how Dave let someone know that morning. I think he called in, but don’t now what time, and I couldn’t remember who he called. I have to believe it must have been shocking that morning as people learned of the seriousness of what was happening to me and especially our catalog team as we were zeroing in on finishing up the catalog files to send to them to the printer. Luckily, I had just finished up with the main layout, but I don’t recall if everyone knew that.

It was almost like I was there wandering the halls at work that morning trying to find out what was going on…perhaps I was dreaming. If I wasn’t, I’m worried. LOL

Again, I’m not sure why those thoughts came to be. Perhaps it’s due to my being worried about this year’s catalog. A lot of changes…perhaps a much larger catalog, which means a lot more of my time. A new job title, with some new responsibilities….everything is still a big question mark and I don’t like that. I like to know what’s going on so I can plan and prepare. It’s just who I am. I don’t mind change, but it’s the impending stress that I’m worried about. Stressing about stress! LOL Not a good thing and also not having someone here in Maine to operate, should I need to have something done with my coiling down the road….wow, getting WAY ahead of myself.

Anyway…for those of you reading this, even months and years after your annie and operation, you’ll always think of it and at the strangest time.

1-Year Annie-Versary

My one-year annie-versary was met with a beautifully, sunny and warm fall day. However, unlike last year’s day spent in ICU, this day was filled with self-indulgence and rewards- and why not?

  1. I took the day off work. I wanted to celebrate this day with living…not working.
  2. I treated myself to a one-hour aromatherapy massage, a french manicure and a warm stone facial at The Senator Inn & Spa.
  3. Dave and I enjoyed a nice mid-day cruise on the boat after my spa visit and I called my mom…something I was unable to do for almost 7 days last year. He set out a Care Bear and a very sweet card for me. (Check out this entry on the history of the Care Bear.)
  4. Dave presented me with a small pumpkin and a card which contained a gift certificate for my favorite greenhouse Longfellows Greenhouse at the hotel. He had packed the pumpkin in his suit case! LOL
  5. Dave and I enjoyed a wonderful dinner at The Senator Inn & Spa’s restaurant Cloud 9 and started it off with a champagne toast before dinner. We ended with a carry-out tiramisu to enjoy later in our room.
  6. We enjoyed the pool and hot tub at the inn and worked off our dinner…well, Dave did! LOL
  7. We stayed overnight in a spa suite with a nice gas fireplace and very cushy beds.
  8. The next day Dave and I had a terrific breakfast then enjoyed a visit to the greenhouse to pick up some pumpkins, hay and corn stalks for some seasonal fall decorating. I don’t normally decorate for fall, but this year I am because I’m here to enjoy it, so why not?
  9. A fall drive through the hills to enjoy the foliage was next and another sunny, warm day greeted us.
  10. We enjoyed a long cruise on the boat where at anchor, we both fell asleep. Thankfully, it wasn’t windy, so no fear of the anchor coming loose while dozing! LOL

The night before, the day of and the day after my annie-versary, were filled with lengthy discussions and memories of how it was a year ago and things that happened to not only Dave and myself, but to other family members and coworkers. I found out some things I hadn’t known before about the day I was admitted to the hospital and when I went into surgery and during recovery. Mostly because I was on so much medication I don’t a lot of it.

Although Friday was a day filled with rewards for myself, it was reward enough to be here and to be enjoying such a lovely time with my “Maine Man”…who has been smoke-free for a year as well.

I certainly had some strange emotions flowing through me this past week. I can’t even put some of them into words. I just know in remembering how things were last year I’m very lucky and very blessed.

Surgery

I don’t recall much about the day of the surgery. I remember being wheeled down the hallway to surgery mostly because it is painted with giant flowers. I remember being shaved in the groin and getting a shot there and that’s it.

Dori and Dave comforted each other during the surgery which lasted 2 hours. They visited the chapel and prayed for me and were greatly relieved to see Dr. Kwan come out of surgery with a smile on his face saying things went well, then to see me being wheeled out of surgery with my hand on my chin already complaining about the tape gunk on my chin from the feeding/air tube they had to insert for surgery.

Apparently, my post-anesthesia comedy show was a hit. I complained that Ashley from the ‘Dancing With The Stars’ television show was losing her microphone. Which is odd because they don’t sing anyway!

Then I said “The Care Bears are drowning”. Dori asked me if I wanted her to save the Care Bears, or if I wanted to do it? I then said with great disdain “Screw the Care Bears!”.  Comic relief. I was told nurses laughed as well. I’m glad I entertained! LOL I don’t recall a moment of it.

I vaguely recall the rest of that day and night because I got pretty sick. I could not stomach morphine, then they wanted me to swallow these massive horse pills called Nimodipin which were vital pills for me to take as they prevent vasospasms.