Category: Medical Procedures

I Remember

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As my six month anniversary of my brain aneurysm clipping arrives, I ran across the notes I took at my first followup appointment with the surgeon. I scribbled that the “bone has to heal”. I keep forgetting the bone will heal around the screws and plates holding the bone flap secure. The last several weeks, I have “felt” my brain/head/nerves when I lay at a flatter level in bed. It’s not painful, it’s just not a pleasant sensation. So I have added another pillow and that helps.

On Neurosurgery.com from Australia, there was this question: Does the bone heal back into the skull?  In most cases yes, but in some people it can re-absorb to a degree then you will have a depression in your skull.

I must be one of the “some people” statistic. I notice the depression and can feel it and Dave has noticed it, but unless I point it out to people I don’t think they know it’s there. So I should stop pointing it out, right? LOL Hey, I had a hole cut into my head and 53 stitches. It MAY just leave a scar, right?

I know things are continuing to heal. The scalp is still numb, but it appears to be getting some feeling back now. My short strands of hair that were shaved at the incision are now growing a tick longer and annoying the hell out of me! We’ll see if I can hold out one more month then get it all cut short for the rest of the summer.

I THINK I’m starting to get some energy back. Granted, I haven’t really DONE much of anything. I’m getting chubby, but I’m rested. That’s good isn’t it? I’m up for a full physical next week and have to get some lab work done this week. We’ll see how my numbers look.

Overall I’m doing well. I’m listening to my body and when I need to sleep, I sleep. At least I try to. The main reason I had this procedure done was so I can continue living and that’s what I’m trying to do…one month at a time. I must remember I am still recovering and must remember my head/skull/brain is still healing. My brain bling is firmly in place.

Film At 11

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I’ve seen many videos and demonstrations online showing graphics of brain aneurysm operations and medical personnel discussing procedures, treatments and causes of brain aneurysms, but the video below is by far the most educational one I’ve seen to date.

All of the doctors speak clearly and in a language the typical lay person can understand, but it’s the questions the moderator asks (some from viewers) that are probably THE most asked questions. When we’re at brain aneurysm events, many of those types of questions are asked of us. It was reassuring to know we’re speaking the same language as medical professionals.

It’s an hour long, but well worth it. The main focus of the video is coiling an un-ruptured brain aneurysm and the “what, why, and how” of that procedure, but they go into very good details on other treatments and causes of brain aneurysms. I think anyone out there who is newly diagnosed would find this very useful. It’s produced by Baptist Health hospital in South Florida and their staff members are obviously touting their own facility, which looks very good by the way, so if you’re from Florida…you’re lucky to have such a great team!

Brain Aneurysm Video

I have been through two coilings and now a clipping at Maine Medical Center from 2006, and I believe the Neuroscience Institute staff that MMC has acquired is now one of the top crews on the east coast. They’re highly skilled, diverse surgeons and interventional radiologists who can handle cases that were always sent to Boston. People should no longer question having their brain aneurysm operated on at Maine Med. We are very lucky to have this talented group of individuals and nurses helping our local community.

Three Week Update

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At the three week mark, I need to step up my recovery and build up my stamina. Dr. Dave informed me yesterday he needs to get me OUT of the house and exposed to more stimuli. Hmm….wonder what that means…and just where did he get that direction?

Seriously though, I do need to do that. During my recovery after my rupture, once I started going into surroundings that I wasn’t seeing on a daily basis that had a lot of clutter, it was tough to process all of the data my brain was seeing. I am hoping I won’t have that kind of difficulty this time because the clipping wasn’t an emergency situation like the rupture in 2006 was.

I’m now trying to come up with a word or two to describe what my scalp feels like the last couple of days. It doesn’t hurt or ache really, it just feels…odd. When I psychically touch the left side of my head it psychically feels like my scalp has been shot up with novocaine and I’m told it could feel that way for months. That’s an easy one to describe and something other people can relate to.

However, when I’m not touching it, there are odd sensations and slight aches and pains when I’m simply sitting still. I’m assuming it’s all part of the process…just strange for me going through clipping this first time after multiple coilings

My hair is growing back and, if the winds are favorable, I can cover that area up with the longer hair around the 1″ wide shaved section and the incision. If it’s windy…well, people get the freak show.

When I have my 4-week follow up appointment, I’ll be curious to ask my Dr. exactly where the bone section of the skull was removed and to get a better idea of the size of the aneurysm.

From middle of forehead to ear Hair growing back And some hair covers it

Fresh Air

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Yesterday was a breath of fresh air…literally! It finally warmed up enough and wasn’t horribly windy or icy outside, so I took a short walk down the road and back with Dave as my crutch. Then we filled the bird feeders. It was chilly, but that fresh, cool air in my lungs felt great.

I think one of the reasons I get a little bit dizzy inside when I walk is that I have to turn around so much and if I get walking too quickly I turn around too quickly. When we walked outside, I could just go straight…and it was much easier. So I should either walk outside or go slower inside, especially when turning. Makes sense.

As we were walking into the house the phone was ringing. It was my fellow aneurysm survivor Lori, from Florida calling to check in on me. She had been reading my blog and wanted to let me know a few things. One was that my numb head could be that way for months until all of those nerves that were cut get aligned back up and heal. I get to look forward to prickly feelings! It was so nice of her to call and it’s certainly a comfort to speak to someone who’s gone through it and knows what you’re experiencing.

Then, while I was in phone mode, I gave mom a call and checked in with her, then had some lunch. Needless to say, I was pooped.

However, I’ve been craving scones for some time now and knew I had a scone mix in the pantry, so I thought I’d mix those up before collapsing for the rest of the day. There are literally 4 ingredients to the scones. The mix, one egg, butter and milk. They are SO easy and quite tasty, but wow, did cutting the butter in cause pure exhaustion. I took my time, but it took a LOT of time. LOL

15 minutes later I had fresh scones and I DID eat them with a nice cup of tea and some marmalade, then hit the love seat and crashed. Dave made some more stew for dinner and it hit the spot later.

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Outside! Finally. The killer scones.