2nd Annual KAT-Walk 2010

Yesterday, the 2nd Annual KAT-Walkwas held on the Back Cove in Portland. A 3 1/2 mile walk to remember Kim Tudor and to raise awareness of the causes and symptoms of brain aneurysms, as well as raise money for the Brain Aneurysm Foundation.

Many people worked many months bringing all the elements together for a wonderful day. There was a silent auction, a 50/50 raffle, and we sold t-shirts. The final numbers haven’t been tallied yet, but to Kim’s family members and close friends, I feel it was a huge success.mThere was also a very special article about Kim that was written and printed in the Friday issue of The Portland Press Herald. Many people commented on the article and how special it was. I completely agree.

We were also able to get some local television coverage, which was unexpected and surprisingly wonderful as well.mThe camera crew and reporter interviewed Dave, then hung around to film the event and stayed for the start of the walk. Thank you WGME and Channel 13 for doing this for us and thank you Ray Smart, for speaking with them to give us some coverage. Here is the Video.

The crew was there covering the ALS (Lou Gehrig’s Disease) walk that was also happening on the Back Cove earlier in the day. We saw their piece on the ALS walk on the news as well and it was wonderful. Their event was highly attended and looked like they had a professional crew to handle the event. Another very worthy cause to bring attention to and the Channel 13 piece had a very moving and emotional tribute to one local soldier who was battling ALS, but was able to complete the walk. KUDOS to you!

On a personal note for me, I was able to spend the day and meet three other ruptured brain aneurysm survivors. Two I met that day, but one, Julie from NH, I had met online at the Brain Talk message board shortly after my rupture. We share three major things in common:

1) Our ruptures were treated at Maine Medical Center,
2) Dr. Eddie Kwan performed our coiling procedures, and
3) WE SURVIVED!

I was thrilled Julie and her husband came over to participate in the walk and to also help raise awareness. Julie is still suffering complications from her rupture and well as other medical issues so I was doubly pleased she made the effort to be there and lend her support.

Another young woman came to the walk who had suffered a rupture but wasn’t quite sure where to turn locally. Hopefully, we were able to direct her to where she could get some comfort and assistance and hopefully we were able to educate those who aren’t aware of the symptoms, so that if anyone in their family, our themselves for that matter, exhibit any of those symptoms, they’ll take them serious and seek medical
assistance immediately.

I hung around the Brain Aneurysm Foundation tent we had set up to help sell t-shirts and offer any information that I could to people who were curious. A woman from Orono, Maine, Gail Bickford, came down for the event and helped man the tent. She is not only a ruptured brain aneurysm survivor, but a cancer survivor. Some would say a walking miracle…and she DID walk! After Julie and I did our 1/2 of the walk, we came back to the tent to relieve Gail and then Gail proceeded to make the entire 3 1/2 trek. I was very proud of her and thrilled she did it. Certainly put ME to shame, but I did the best I could.

At the end of the day, Dave and I felt the walk was a success. We may not have had a professional event staff to man our walk, or a professional fund raising committee to plan and arrange the printing, donations and everything else, but I think that’s why our walk was so special. Everything that was done and everything that was created, was all very, very personal and done by Kim’s close friends and family, not my others
who didn’t know anything about her or aneurysms. As we said last year and this year, what we lacked in quantity, we more than made up for with quality and I know Kim would have been very pleased and proud of the work everyone did and the turn out. We think she was there in the form of the gale-force winds that popped up right there on the water! LOL Dave thinks it was Kim getting back at him for all of the scary sailboat rides he used to take her on.

God Bless you Kimmie and we’ll never forget you.

3rd Annie-Versary

I “celebrated” my 3rd annie-versary of my rupture last Monday. It’s been a rough month with putting Kim to rest so close to my own anniversary of my rupture and things being very stressful at work. I think Dave and I just need some time away from everyone and everything.

BUT, I have to continue to remember what I’ve been through and how lucky I truly am. Also how lucky I am to have Dave with me.

Even though it has been three years,mthere are so many things about that time period that remain so fresh in my mind. Some good, some bad and even after three years, there are still things that effect my head. I still get very tired. I still have head pain when I cough hard or sneeze hard. My eyes still have trouble in stores that have a lot of enclosed, small aisles with tons of items in them.

One interesting “side effect” I noticed is that I sleep more soundly. I was always a VERY light sleeper prior to the rupture. Now, once I’m asleep…I’m out! The furnace doesn’t wake me up when it pops on. Only the cats seem to wake me when I don’t want to be awakened…as the did that cool October morning in 2006 shortly before the rupture.

I’ve had trouble dealing with Kim’smdeath over my survival of my rupture. The questions “Why her and not me” is a question that won’t ever be answered. And I supposed I have to be okay with that. It’s a struggle sometimes.

It’s been a tough year for Dave and I, but I look forward to making more plans for our wedding in June. Something we’re looking forward to with great anticipation.

The KAT-Walk 2009

It was a stunning day out and a stunning location along the Back Cove of Portland, where Kim spent a lot of time walking. Today was the first KAT-Walk for Brain Aneurysm Awareness. Dave and I got there very early for set up. Several tents, flags, signs and tables needed to be assembled. One tent for Dress For Success, one tent for Registration, one tent for the water and cheese that was donated, one tent for The Brain Aneurysm Foundation and a banner/tent that Dave made for our Starting Line. Then we had to post the many, many sneaker signs that Dave made. Among other things. Everyone was very impressed.

Almost 200 people showed up for the walk. Many others stopped to make a donation, but didn’t attend the walk. I’d have to say what we lacked in quantity for the walk, we made up for with quality. Salt-of-the earth people with compassion and caring in their hearts. Kim was definitely looking down on us. Approx. $2,500 was donated just today and there is more online and in the mail that we’re aware of. I’m now hearing well over $5,000 has been raised so far.

Kim’s dog, her pug Bella, lead the walk. Dave informed me after a few steps that he wasn’t participating with the walk, so I continued on by myself. Nancy couldn’t do the walk either because of her hip surgery last summer. So I plugged on and met up with one of Kim’s dear friends, Angel and she had a bad ankle, so we kept a slower pace, but made the entire 3+ mile walk and crossed the finish line in a little over an hour very
sore, but proud of ourselves. I’m sure a lot of people in that city walk, bikemor run that trail on a daily basis, but I don’t, so I was beat.

Everyone helped tear things down, which was a HUGE help, then there was a small reception over at a pub/restaurant at a golf course that Nancy always goes out to. Everyone agreed it was a good day and everyone agreed Kim would have been very pleased.

The woman, Ginny, from the Brain Aneurysm Foundation brought some great things to hand out and raise awarenessmfor the symptoms of aneurysms and the kinds of treatments. Magnets, fliers, brochures, key chains, pens and even DVDs. We were VERY pleased to see manympeople stopping at the booth and speaking with her. I had a short chat with hermabout my own experience with my annie and Dori and Rhonda, she agreed with me that you two should be check out given our family history with Debbie, Tim’s and my aneurysm. Of course, I now worry about Dave and Nancy too!

I took my camera, but never pulled itmout. There were many people taking photos and the sister-in law of one of the planners is a professional photographer and donated her time and services to take photos the entire day. I can’t wait to see her photos. I think she’ll have some really great shots.

We’re both exhausted, but it was worth it. I ate two brownies with a tall glass of milk when I got home and had an Ibuprofen chaser and a long soak in the tub.

I think Kim was looking down on us and smiling and telling God “See those signs? My Uncle Dave made those.”. It felt good to DO good in her honor.

Clean Up on Aisle Four

I went Christmas shopping this past week. That’s not so unusual. But the last two years since my rupture, I’ve done the majority, if not all, my Christmas shopping online as stores just bother me too much.

I decided to take a chance and save on some shipping and time and go to two stores (Target and Barnes & Noble). I took my time and after six hours and THREE stores, I was home. I didn’t even eat lunch (bad Heidi!) I still had some issue with over-stimulation in some aisles, but once I just got into the rhythm of very deliberately looking at one item, registering it in my brain, the moving on, it went very well. I was by myself, so I didn’t feel any pressure to hurry up or move along and that was the key. I could take my sweet old time and go through one aisle as many times as I wanted to.

Going into Michael’s Craft store was a huge hurdle. The first time I went into that store after my rupture, it was awful. The aisles are very narrow and they’re packed floor to ceiling with oodles of items. I’ve been in a couple of times since and this time it wasn’t too bad. I think I went through the store four times, so getting the lay of the land, as it were, helped.

So, for those of you having problems in stores, it will get better. I rested before I went shopping and made sure I ate a good breakfast. If I try to shop after working all day, it’s usually very, very tiring and disruptive on my brain and eyes. Too much stimulation with colors, shapes and text.

I was pleased after visiting three stores and not having any lunch with how I felt when i got home. The lunch thing wasn’t good, but I was on a roll. I was VERY tired the next day, but not in pain…just dopey. I’ve always taken a day off work in December to go Christmas shopping. I actually enjoy it. Listening to carols and looking at all of the pretty decorations and buying things I know will make my family and friends smile. I still enjoy shopping online better (no parking or lousy sales people to deal with) but for Christmas this is an “outing” for me and I was glad I finally was able to get out there and do it again.

I’m reminded of my post from December, 2006 when just wrapping presents exhausted and frustrated me. I’ve come a long way baby! Merry Christmas!