Category: Brain Aneurysm

The Frustration with the Frustration

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It has now come to my being frustrated…because I’m frustrated! Yikes!

I get frustrated when I can’t just up and do something that I used to be able to do….like get in the car and go to the grocery store. I don’t like HAVING to rely on people do so much for me, especially when I CAN do other things, but not some still. Stores are still the biggy for me. So it’s double frustrating.

I feel guilty asking for something. I feel like I’m a burden sometimes. I know I AM, but I don’t like feeling that way. But I can’t help it sometimes…I have to be. I don’t like it anymore than they do. I just can’t do the big stores yet. I know I can’t when the smaller stores still bother me.

I could only un-decorate HALF the Christmas tree and Dave ended up  having to take down literally everything else. I felt so horrible, just sitting up was a struggle. I hate to have him do that and wish I could have done more. I may have been able to, but much later in the day and even then, not sure how much.

It’s frustrating being frustrated!

Sometimes Too Much

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There are several aneurysm survivor’s message boards/support groups out there online. While I was still in the hospital, I found it very comforting to talk to someone who was going through the same thing. If there were a local group here in Maine of people who survived aneurysms,  I’d probably be going to that as well.

But, for all the help, comfort and positive reinforcement I have been given on the message board I belong to, it can also be a bit scary. There are many survivors who have gone through, and continue to go through much worse after-effects and problems than I have. For those folks, I don’t know what to say. I can’t imagine living with multiple unruptured annies. Little time-bombs waiting to go off unless they can be
operated on. I had one…I just didn’t know it.

There are people who have gone through less than me as well. Some are lucky enough to have found their annies during a scan BEFORE they rupture and have the surgery. We all go through some of the same symptoms, but no two stories are exactly alike, which causes me some upset.

Although my last MRI looked good, I’m worried that something else will show up on my angiogram in April. Chances are it won’t, but because I read a lot of stories of people who go back for a check up and something shows up, it has caused some concern. I hate to worry about something that may not happen, and probably won’t, but reading all the stores makes me think about it, which in turn….well, it makes me worry. I don’t lose sleep over it, I just think about it and have a twinge of concern. I’m sure as soon as the date for my angiogram gets closer, I WILL think about it more.

Sometimes I just need to step away from the message aboard for a few days and remember how lucky I am and not read the horror stories. I know that seems horribly selfish, but I need to think about me now and what I have accomplished and not take a step back and let worry consume me. So far, it hasn’t, but who knows what’ll happen down the road. Hopefully nothing! And I need to concentrate on that.

Survivor’s guilt hits me when I read the stories of others who are still suffering so much after their annies have ruptured. Why am I different from them? What led my annie to bleed less than others? Again…we’re all different, but the common denominator, and the reason I keep going back to the boards, is that we’re all survivors! God bless everyone who’s had an annie…ruptured or not.

First Day Back at Work

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I went in for my first day of work yesterday. I showered the night before, so all I would have to do was fix my hair and face, eat breakfast and get my clothes pressed. Turns out, that may have been too much! LOL At least I’m not used to doing those things in a hurry anymore, so I was tired before I ever sat down in the car. Dave drove me to work.

Two other people have been using my office since I was last there on Oct. 4th, so I spend most of the day taking back my office, computer and my files. I had a lot of filing to do.

Just as it was when I arrive home from the hospital, it was a bit of a time warp in my office. File folders waiting for jobs to be completed and filed the week of Oct. 5th, were still sitting there on my desk. The catalog pages I had completed and had proofed, were sitting on my desk. My clock had stopped. My calendar on the wall was still on October. Just very strange. I had to become reacquainted with my office and my “stuff”.

I brought along some healthy snacks to munch on and made myself get up from my computer and walk down to the lunchroom to get them, as well as drank a lot of water. I was hoping to work until 4:00, which a lot of people thought highly ambitious my first day back. Turns out, they may have been right. Around noon time, I was pretty sure I shouldn’t push it until 4:00. I listened to my body today. I knew I probably COULD stay there until 4:00, but knew I SHOULDN’T.

So, after I ate and closed my eyes again for 10 minutes, for the 2nd time that day, I let Dave know I would need to come home. God bless him, he left immediately and drove the 30 miles up to pick me up. I was horribly tired and had a pretty nasty headache for about four hours in the evening.

Today, my head feels better, but I’m really, really dragging. I’ll try the work thing again tomorrow and see if it
continues to get better.

It was great to see everyone again. I really missed them and their humor. I laughed a lot, which I needed. I missed
the social interaction and feeling a part of something. It was small taste of getting my independence back again.

I am, by no means, ready for a 40 hours work week. But it’s a small step forward.

Speaking of work…

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…I’m going back. Not full time just yet, but to start to get back into the swing of things for two days a week. I HAVE been doing ads from home and a few other small projects, but at home, I’m afforded the luxury of being able to stop whenever and go lay down, or just rest or do some therapy. In the office, I’ll have to FORCE myself to stop and rest. I have a tendency to just sit for hours, then realize I skipped lunch! Somehow, I don’t think my head of body will allow myself to do that anymore.

I really KNOW when I haven’t eaten for a little bit. My head hurts more and I get the shakes…far more than I used to. The only “side effects” I’m having as a result of the ruptured
aneurysm and the surgery, are a headache, tiredness and the shaking. Mostly in my right hand, but both hands can be effected if I haven’t eaten in awhile, or do too much.

I always used to have a small shake, but it’s much more pronounced now and the rupture & surgery is the only thing that has really changed…..well, that and the fact I’ve become so darn lazy. I SIT very well!