Devastating Couple of Weeks

A few days after Christmas, we received news that Dave’s niece, Kim, had died of a massive ruptured brain aneurysm. It was bad enough we lost her at the all-too young age of 32, but once we found out the cause of death, it threw a level of other issues at me because I too, had suffered a ruptured aneurysm.

Why did mine rupture the way it did and why didn’t I die? Why? Why? Why? All questions one can’t answer. I have my own “whys”, her mother has her own “whys” as do many other people. Like most undetected annies, Kim didn’t know she had it and as far as everyone knew, she was very healthy and living an active, if not stressful, life at the time of her death.

There are so many people who survive ruptures, so many who do not and even the consistent threads that DO link some of these people together such as smokers, hereditary, age, women….aren’t consistent enough for people to instantly know they have an annie. Some smokers who have a history of annies in their families, never get aneurysms, while other families have multiple deaths and ruptures in their families.

It was just the irony of Kim having one when she was not a blood relative of mine and didn’t display any of the so-called “symptoms” that may, or may not, occur from an annie. She did suffer from migraines, but so do millions of other people and they do not have aneurysms, so one can’t say that was a “sign” for sure. My mother had migraines, both my sisters do, my aunt and myself. I’ve had two first cousins with annies and myself.  I wish my sisters and niece would get CTA’s. At least if you KNOW you have one, you have a fighting chance of surviving. If you don’t know you have one, and it ruptures, chances of survival decrease the older you get and obviously, the severity of the rupture, location and size of the aneurysm. So many factors
come in to play and it’s different for every person.

I started to look at it like suffering with an annie was something special and because the brain is effected, it’s just that much more serious than anyone else’s maladies, but truthfully, it’s no different than suffering a catastrophic heart attack or stroke, or being hit by a car. You may, or may not survive. Many are lucky, many are not and trying to figure out the “whys” can eat you alive.

As Dave says…”It is what it is.” and often times we just have to accept what “is” and move on no matter how terribly difficult it can be without those we love beside us.

Also today, I get news that my cousin Jennifer, who had been fighting a brain tumor since 1999 is close to death’s door. How painful it has been to read her brother’s posts on The Caring Bridge website about her battle and how terrible is must be for them to watch her deteriorate and not be able to help her in anyway. I know how helpless one can feel after watching my own father fade away from us for months. Jennifer has been so strong with her battle and always gave others strength. I pray God gives her entire family strength and comfort now as we wait for news.

Follow-Up to Angio

The week of Thanksgiving, I was FINALLY able to spend a little bit of time with Dr. D’angelo and ask him the questions I’ve had written down for several months.

First off, we looked the the most recent angiogram and he indicated everything looked very good. So I was happy to hear what the other Dr. told me after the procedure was correct.

He also informed me I didn’t have to be check again for two years. So November of 2010, I’ll get a CTA with contrast. Then, if something of interest shows up, they’ll do an angiogram. Angiograms still carry a risk of stroke and other items as it’s a far more invasive procedure than a CTA or an MRI. I’m happy with that at this point.

Dr. D’angelo also said I was at no more of a risk of stroke than before the annie. Again, glad to hear that. I’m in good health, no blood pressure issues, I don’t smoke so those are all good things in regard to developing another annie. However, with my family history, you never know so I’ll happily get checked out every couple of years to keep myself safe.

2-Year Angiogram Results

I had my 2-year angiogram following procedure yesterday. I have to admit I was nervous because Dr. Kwan wasn’t doing the procedure, but I was soon put at ease when I found out the Dr. that WAS doing my angio, Dr. Thomas Dykes, was the Dr. who did my first angio back on Oct. 5th, 2006 to confirm it was an annie and a rupture prior to my coiling. I felt better after I found that out.

After what occurred during my last angiogram I made sure they did not attempt to use the angio seal/plug this time. They all concurred they would not do the seal. I was glad! So what if I had to lay around for four hours, I wouldn’t have to endure the pain again.

I was exceptionally dopey after this angio though. Perhaps it was just because I was just so tired after a long, long week getting final files to the printer for the catalog. Regardless, all I wanted to do was close my eyes.

Dave, as usual, was my angel and was by my side almost the entire time. I wasn’t nearly as peppy this time, but he helped feed me again, which is tough to do when you have to lay almost flat and he took me out for an M&M McFlurry at McDonalds afterwards, which hit the spot.

The great news is that about two hours after the procedure, Dr. Dykes came and informed me the nothing had changes since the last angiogram and everything looked good!! Just what I wanted to hear. So, now I know all those little annoying headaches I continue to get are just that….annoying headaches due to not eating well, not drinking enough fluids and just overworking my poor little brain.

Even two years later, I know I’m still healing. I’m the only one who knows what I’m still having difficulty with and what I’ve gotten back to full-strength. And, yes, there are still some things.

But this was great news and I’m thrilled. And, as usual, the staff at Maine Medical Center in Portland were fantastic.

I’m still pretty sore in the groin area today, but I knew it was going to be that way and I’m taking care of myself. Taking care of myself…that’s what it’s all about now.

2-Year Annie-Versary Today

Two years ago, my life changed. Thankfully, it changed in a way that allowed me to still be here.

It’s a lovely Fall day here in Maine, just as it was in 2006. But instead of being awakened with horrific pain, I heard a chipmunk chirping outside my window, my Maine man getting his morning coffee and my kitty cats flitting about the house waiting to be fed. Yes, this morning was far better.

Last night I treated Dave to a wonderful dinner at The Village Inn here in Belgrade. I ordered a split (small bottle) of champagne and we toasted to being alive. I wanted to pay for it to thank him for everything he’s done, and continues to do, for me. He was at the hospital EVERY day I was there. He drove down at 2:00 a.m. one morning after having just left, because I needed him. He got groceries for months after I got home. He drove me back and forth to work until I was able to drive on my own. He cleaned house, did laundry, did dishes and took care of me…and never complained. He’s my angel.

Today we’ll bundle up and take the pontoon boat out for probably our last cruise of the season and enjoy the fresh, cool crisp air and the view. Two years ago it was an ugly room in ICU. I’ll take this one any  day!

Happy Annie-versary to me!