It Has Been A Week

I have been close to tears about five times this week. None of these times actually produced tears, mostly because two of the times were at work, so I really kept it in, but the other times certainly could have produced tears….but nothing.

Since my brain aneurysm rupture in 2006 I noticed whatever mechanism within my brain that triggers tears, just isn’t the same. I would feel sad about something, and knew I would normally be crying over it, but the tears would not come. I’d be curious to know if any other brain aneurysm survivors have experienced the same thing. However, when those tears DO start flowing it’s difficult for me to shut them off and they completely drain my body and brain of any needed functionality.

Tonight I opened that valve and the tears are flowing. This Sunday is Mother’s Day. Normally a happy occasion for families to celebrate their moms with gifts and spend time with mother’s, granddaughters and grandmother’s. Unfortunately, for my family, it’s a sad occasion and doubly so this year. No, my mother hasn’t left us, but both my sisters have. So not only has a mother lost two daughters, but I’ve lost both my sisters and my niece and nephew have lost their mothers.

My sister Dori had a massive ruptured brain aneurysm ON Mother’s Day in 2012. My husband and I were in London, England when we found out. We cut our trip short to join my family in a two-week, hopeful vigil praying for a miracle that never happened. Technically, we had already lost her on Mother’s Day. I don’t know how my mother or my sister’s son, can ever replace that memory. I know I can’t. Because she died of a brain aneurysm, I’m also tormented by my own demons about how she was misdiagnosed and how I should have pushed her more to insist the Dr’s look closer. Having the “urgent care” president where she was treated admit in a letter, after her death, that aneurysm signs were missed, makes it even more heart wrenching.

My “Family” mailbox in my Email now only consists of my husband and my niece. No other relative emails me. In fact I didn’t even know my cousin’s husband had died because she didn’t email me and none of her brother’s or sisters did. I miss my emails from Dori and Rhonda and Mom. Since mom had to switch to a laptop from WebTV, she hasn’t been able to understand and grasp using a computer, so we no longer have that convenient form of communication. She doesn’t call me, due to the cost, but I call her two times a week. And as I sit here typing this, I am bawling and feeling horribly pain in my head, that is just short of 4-months out of open brain surgery to repair my 2nd aneurysm.

Searing pain around the side of my head that is made worse by the stress of crying…and I can’t stop. I want, and desperately need a day off of work to get some sleep and rest, but there are meetings I must attend. Why I’m asked to attend some of these meetings, when my ideas and recommendations are met with a giant eye-roll and dismissed, is something I don’t understand. Even though I was apart of developing the program that’s being discussed and am very familiar with how it works, being treated that way in front of many others (for a 2nd time) can lead to tears, but I held it together…until now. So on top of grieving again for my sister, I’m dealing with being dismissed at work and just getting there on a daily basis while I’m still recovering.

Then there is my darling niece who will have to endure her first Mother’s Day without her mom because my other sister Rhonda died just 4 months ago. My poor mother has lost two daughters and I’m all she’s got left. And even SHE is having issues right now with horrible pain in her back, which brings back many memories of my sister Dori. She had horrible back pain for months before finally having surgery a few weeks before her death and I’d talk to her on the phone as she was in that pain and knew she had been crying due to that pain.

So when I hear my 87-year old mother talk about getting to the point where the pain makes her cry, how can I NOT think about my sister. I don’t know what to do to help my mom when she’s in NY and I’m in Maine. She’s been to two doctor’s and they’ve given her patches and some meds and told her to stop lifting things. Great. That’s great advice…but do they know what is actually wrong? I doubt it.

So, that crying thing is very difficult. We’re told it’s good to cry every once in awhile to get it out of your system….they say it’s a “good cry”. Well, for me, a cry is never good. My head feels like the skin and muscles are being pulled away from my brain right now. And it won’t settle down, until I settle down. Poor Dave has tried to console me, but I don’t even know what I need. I guess a “good cry” and venting in my blog will have to suffice for now even though I know I won’t feel any better physically or mentally afterwards.

Back At Work Full Time

It’s only Wednesday, but I’ve worked for 8 hours every day this week so far. Monday and Tuesday in the office and today from home. So far, so good. Haven’t fallen asleep or fallen down the stairs, so that’s a positive sign.

Monday I had a pretty good headache by the time I got home and was very tired. Tuesday was VERY tired all day, but no headache. Today I had a headache all day. Almost called it a half a day, but stuck it out after two Tylenol after lunch and even made a pretty good dinner. EXTREMELY exhausted right now. Forgot to call my mom today…hope she forgives me! I’ll do it tomorrow.

As I start to develop fatigue during the day, I get this zinging pain around the bone plate area. They don’t last long, thank God, but they’re very sudden. Almost like a little electric shock being sent through a pointer. Very sudden, sharp pain, then it’s gone.

My scalp is still numb. Maybe a LITTLE bit more feeling back. Hard to tell just yet. At least taking showers doesn’t wipe me out as much. My jaw is still hurting through. Sometimes it’ll get a longer, aching pain and other times it’s a zinger pain like the head pain is.

I now have one side burn. ONE. LOL The hair around my ear has grown back, but it’s not long enough to go behind my ear with my glasses, so it has a tendency to stick out straight. Thankfully the rest of my hair can cover it for a bit.

The few people who know I’m back at work have been very welcoming. I didn’t see any of them while I was out these two months. Thankfully, I didn’t have a huge pile of jobs waiting for me when I got back and I have a good project to work on that will keep me busy, but isn’t terribly pressing so I can take my time with it. I know the fatigue will be with me for a while, so I’m extremely thankful to work for a company that allows me to work from home so I don’t have to get up as early and worry about the drive. Dave has been driving me this week.

Hopefully tomorrow and Friday won’t be too tough and I can catch up on my rest this weekend. But, it’s another milestone I’m getting through getting back to the real world. I’m one of the lucky ones.

Day of Rest?

Today was supposed to be my day of rest after working yesterday, but I’m not sure I did such a good job of it. I was tired when I woke up…or rather when my cat woke me up, over and over again, but not as bad as I was expecting to be. I’m pretty sure the good nap yesterday helped.

I wanted to try driving again and Dave needed to go in to town, so I offered to drive. This time I drove into town and back home. It was a bit of a struggle on the way back as I could feel my confidence and awareness waining. It was the perfect amount of time and distance to try this out again.

Had a pretty good headache when I got home and needed to lay down and rest. I did not rest enough though. Should have napped. Tomorrow could be interesting, but I got a full drive in today, so I’m proud of myself for getting that done. Need to do it more. One day at a time.

First Day of Work (at home)

I’m going to try working at home this week on Monday, Wednesday and Friday to see how that goes for me. I got up early, washed my hair, fed the cats and ate breakfast at my normal “work” time then at 7 a.m. I made the short commute into my home office. I need to get used to sitting at a computer screen all day again.

I did okay until about 9 a.m. then had to step away from the computer and walk around a bit. At 10:30 I needed to close my eyes for about 15 minutes, so I set the timer on my computer and sat back in the chair. Ate lunch and walked for 10 minutes inside, then pretty much pooped out around 2 p.m. I TRIED to get a full 8 hours in, but couldn’t keep my eyes open after 7.5 hours. Then slept for an hour and a half.

Not sure how I’ll feel tomorrow, but it’s a start. I received a beautiful floral bouquet from a friend and that sure put a smile on my face and perked me up!