Category: Strength

A Poem

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This poem was posted on the Brain Aneurysm message board. Not by the author, but by another annie survivor.

I’ve been having a strange week. I’ve been thinking about my stay in the hospital for some reason. I have no idea why, but it has been depressing me and this poem just puts it all back in perspective. Couldn’t have been better timing. I hope the author doesn’t mind my posting it again.

Advent at Middle

I am no longer waiting for
A special occasion;
I burn the best candles on ordinary days

I am no longer waiting for
The house to be clean;
I fill it with people who understand that
Even dust is sacred

I am no longer waiting for everyone to understand me;
It’s just not their task

I am no longer waiting for
The perfect children;
My children have their own names
That burn as brightly as any star.

I am no longer waiting for
The other shoe to drop;
It already did, and I survived.

I am no longer waiting for
The time to be right
The time is always now.

I am no longer waiting for
The mate who will complete me;
I am grateful to be so
Warmly, tenderly held.

I am no longer waiting for a quite moment;
My heart can be stilled whenever it is called.

I am no longer waiting for
The world to be at peace;
I unclench my grasp and
Breathe peace in and out

I am no longer waiting to
Do something great;
Being awake to carry my
Grain of sand is enough.

I am no longer waiting to
Be recognized;
I know that I dance in a holy circle.

I am no longer waiting for
Forgiveness;
I believe, I believe.

From Mary Anne Perrone
Ann Arbor, Michigan

My 4-Month Anniversary

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On this, the 4-month anniversary (or “annie”-versary) of my ruptured aneurysm and coiling surgery, I am trying to reflect on what I HAVE been able to accomplish during my recovery, instead of what I still can’t do. It goes something like this

Four months from the time of my ruptured aneurysm, I am able to:

    Bend over without getting dizzy.
    Lift things heavier than a breakfast tray.
    Fill and unload the dishwasher without the aid of sitting down.
    Go downstairs to the basement.
    Do laundry.
    Go downstairs to feed the cats.
    Shower and bath unaided by a seat.
    Dry my hair standing up.
    Make meals.
    Sit at the computer for a few hours.
    Lay down without my head pounding.
    Control most head pain I have without Vicodin, but with Tylenol.
    Go into a store, albeit smaller ones still.
    Drive!
    Go to work part-time.
    Sneeze without fear of my coils exploding.
    Go to a movie.
    Fill the bird feeders.
    Walk without the aid of a cane.
    Laugh and not get too exhausted.
    See my psychologist.
    Read a little bit more and it doesn’t bother me.
    Make the bed.
    Make love. (it’s gotta be said for those other survivors who are reading this and are nervous about themselves.)
    Bake a cake.
    Clean the house a little bit more.
    Speak to other annie survivors.
    Plan my future!
    LIVE!

I’m sure there are more things I’m forgetting, but those are the biggies that I’m recalling needing so much assistance with during those first few weeks when I arrived home after 20 days in the hospital. There are still downsides to my recovery, but today I choose to acknowledge the things I CAN do now, that I wasn’t able to before. ‘nuff said.

Aches & Pains Update

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For those of you who are reading my blog; an update on effects from the aneurysm and surgery.

As or the last couple of days, I have felt pretty good. Still, the time I most feel head pain is first thing in the morning and sometimes right before falling asleep. Sinus pressure still seems to effect me greatly darn it and I’ve had two migraines since the surgery…double darn it.

I still have Vicodin, but only take it when the pain is very sever, which is still can be, but much less frequently. Usually the Tylenol helps, or closing my eyes.

I’m still struggling with stamina…or lack there of. I can do laundry and get a little tired, but talking for a long time or being around a lot of talking can really make me feel exhausted.

I’ve been working 5 to 6 hours a day, twice a week and by the time I get home I’m really pooped. Sometime with a bad headache that last for hours, but for the most part, once I eat something and rest for a bit, it feels better.

Overall, I’m doing better. I’m walking three times a week, just inside. We have a one-story, ranch-style house, so it’s a nice trek and it feels good to have some exercise and get my heart rate going.

I have a friend who’s father is currently dying from cancer. Sadly, there is nothing they can do for him and I’m told, even though she knows he is in pain, he is not complaining.

I was lucky in that I was able to have surgery to correct my problem and I AM complaining. I’ve tried to stop it. My little aches and pains are minor compared to what he is going through and what I’ve already gone through. The worst of my recovery
is over. Frustration and some lingering “after-effect” are all I have to contend with now and I should just buck up and tell people I’m “Good!”. Because, after what I HAVE been there, I truly am. And I’m very lucky to be alive, have all my motor functions and to be able to work some. I have the luxury of time for my recovering, her father does not and God bless him for being so strong for his family.

The Big Drive!

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I work 30 miles away from my house. It’s a nice 60 mile drive round trip and especially icky on winter days, but since we have had no winter yet to speak of, I thought I’d try the drive today on my day off from work.

I had a Dr’s appointment up in that area. I had Dave drive me up in my car to the appointment, then I drove home. The “busier” part of the trip was at the start, so the easier part was towards the end. It really worked out well, especially at that time of day. Noonish.

The drive didn’t really bother me. I noticed my concentration kind of wavered a bit once we got closer to home, but that may have only been due to the fact I was very hungry and there wasn’t as much to keep me at attention during that section.  You forget just how much you should concentrate while driving…and how much I just took for granted. It’s taxing.

As my friend Deb in NY said after I told her about the drive:“We forget how much concentration driving actually requires until we don’t do it for a while. Sometimes, some of us should keep in mind just how much we should be concentrating on our driving instead of putting lipstick on, lighting a cig, drinking coffee, eating something…(and I can do ALL of those
things AND drive stick, but really, should I?  I think not…)”

This was a big step today. I’m glad I did it. Not sure I’m just ready yet for the whole drive and it may not happen again for a couple of weeks, but at least I know my limitations a little bit and at least one way….it wasn’t bad. I was tired and my eyes were bothering me, but nothing horrible.  So, that’s a very good thing.