2nd Annual KAT-Walk 2010

Yesterday, the 2nd Annual KAT-Walkwas held on the Back Cove in Portland. A 3 1/2 mile walk to remember Kim Tudor and to raise awareness of the causes and symptoms of brain aneurysms, as well as raise money for the Brain Aneurysm Foundation.

Many people worked many months bringing all the elements together for a wonderful day. There was a silent auction, a 50/50 raffle, and we sold t-shirts. The final numbers haven’t been tallied yet, but to Kim’s family members and close friends, I feel it was a huge success.mThere was also a very special article about Kim that was written and printed in the Friday issue of The Portland Press Herald. Many people commented on the article and how special it was. I completely agree.

We were also able to get some local television coverage, which was unexpected and surprisingly wonderful as well.mThe camera crew and reporter interviewed Dave, then hung around to film the event and stayed for the start of the walk. Thank you WGME and Channel 13 for doing this for us and thank you Ray Smart, for speaking with them to give us some coverage. Here is the Video.

The crew was there covering the ALS (Lou Gehrig’s Disease) walk that was also happening on the Back Cove earlier in the day. We saw their piece on the ALS walk on the news as well and it was wonderful. Their event was highly attended and looked like they had a professional crew to handle the event. Another very worthy cause to bring attention to and the Channel 13 piece had a very moving and emotional tribute to one local soldier who was battling ALS, but was able to complete the walk. KUDOS to you!

On a personal note for me, I was able to spend the day and meet three other ruptured brain aneurysm survivors. Two I met that day, but one, Julie from NH, I had met online at the Brain Talk message board shortly after my rupture. We share three major things in common:

1) Our ruptures were treated at Maine Medical Center,
2) Dr. Eddie Kwan performed our coiling procedures, and
3) WE SURVIVED!

I was thrilled Julie and her husband came over to participate in the walk and to also help raise awareness. Julie is still suffering complications from her rupture and well as other medical issues so I was doubly pleased she made the effort to be there and lend her support.

Another young woman came to the walk who had suffered a rupture but wasn’t quite sure where to turn locally. Hopefully, we were able to direct her to where she could get some comfort and assistance and hopefully we were able to educate those who aren’t aware of the symptoms, so that if anyone in their family, our themselves for that matter, exhibit any of those symptoms, they’ll take them serious and seek medical
assistance immediately.

I hung around the Brain Aneurysm Foundation tent we had set up to help sell t-shirts and offer any information that I could to people who were curious. A woman from Orono, Maine, Gail Bickford, came down for the event and helped man the tent. She is not only a ruptured brain aneurysm survivor, but a cancer survivor. Some would say a walking miracle…and she DID walk! After Julie and I did our 1/2 of the walk, we came back to the tent to relieve Gail and then Gail proceeded to make the entire 3 1/2 trek. I was very proud of her and thrilled she did it. Certainly put ME to shame, but I did the best I could.

At the end of the day, Dave and I felt the walk was a success. We may not have had a professional event staff to man our walk, or a professional fund raising committee to plan and arrange the printing, donations and everything else, but I think that’s why our walk was so special. Everything that was done and everything that was created, was all very, very personal and done by Kim’s close friends and family, not my others
who didn’t know anything about her or aneurysms. As we said last year and this year, what we lacked in quantity, we more than made up for with quality and I know Kim would have been very pleased and proud of the work everyone did and the turn out. We think she was there in the form of the gale-force winds that popped up right there on the water! LOL Dave thinks it was Kim getting back at him for all of the scary sailboat rides he used to take her on.

God Bless you Kimmie and we’ll never forget you.

3rd Annie-Versary

I “celebrated” my 3rd annie-versary of my rupture last Monday. It’s been a rough month with putting Kim to rest so close to my own anniversary of my rupture and things being very stressful at work. I think Dave and I just need some time away from everyone and everything.

BUT, I have to continue to remember what I’ve been through and how lucky I truly am. Also how lucky I am to have Dave with me.

Even though it has been three years,mthere are so many things about that time period that remain so fresh in my mind. Some good, some bad and even after three years, there are still things that effect my head. I still get very tired. I still have head pain when I cough hard or sneeze hard. My eyes still have trouble in stores that have a lot of enclosed, small aisles with tons of items in them.

One interesting “side effect” I noticed is that I sleep more soundly. I was always a VERY light sleeper prior to the rupture. Now, once I’m asleep…I’m out! The furnace doesn’t wake me up when it pops on. Only the cats seem to wake me when I don’t want to be awakened…as the did that cool October morning in 2006 shortly before the rupture.

I’ve had trouble dealing with Kim’smdeath over my survival of my rupture. The questions “Why her and not me” is a question that won’t ever be answered. And I supposed I have to be okay with that. It’s a struggle sometimes.

It’s been a tough year for Dave and I, but I look forward to making more plans for our wedding in June. Something we’re looking forward to with great anticipation.

2-Year Angiogram Results

I had my 2-year angiogram following procedure yesterday. I have to admit I was nervous because Dr. Kwan wasn’t doing the procedure, but I was soon put at ease when I found out the Dr. that WAS doing my angio, Dr. Thomas Dykes, was the Dr. who did my first angio back on Oct. 5th, 2006 to confirm it was an annie and a rupture prior to my coiling. I felt better after I found that out.

After what occurred during my last angiogram I made sure they did not attempt to use the angio seal/plug this time. They all concurred they would not do the seal. I was glad! So what if I had to lay around for four hours, I wouldn’t have to endure the pain again.

I was exceptionally dopey after this angio though. Perhaps it was just because I was just so tired after a long, long week getting final files to the printer for the catalog. Regardless, all I wanted to do was close my eyes.

Dave, as usual, was my angel and was by my side almost the entire time. I wasn’t nearly as peppy this time, but he helped feed me again, which is tough to do when you have to lay almost flat and he took me out for an M&M McFlurry at McDonalds afterwards, which hit the spot.

The great news is that about two hours after the procedure, Dr. Dykes came and informed me the nothing had changes since the last angiogram and everything looked good!! Just what I wanted to hear. So, now I know all those little annoying headaches I continue to get are just that….annoying headaches due to not eating well, not drinking enough fluids and just overworking my poor little brain.

Even two years later, I know I’m still healing. I’m the only one who knows what I’m still having difficulty with and what I’ve gotten back to full-strength. And, yes, there are still some things.

But this was great news and I’m thrilled. And, as usual, the staff at Maine Medical Center in Portland were fantastic.

I’m still pretty sore in the groin area today, but I knew it was going to be that way and I’m taking care of myself. Taking care of myself…that’s what it’s all about now.

2-Year Annie-Versary Today

Two years ago, my life changed. Thankfully, it changed in a way that allowed me to still be here.

It’s a lovely Fall day here in Maine, just as it was in 2006. But instead of being awakened with horrific pain, I heard a chipmunk chirping outside my window, my Maine man getting his morning coffee and my kitty cats flitting about the house waiting to be fed. Yes, this morning was far better.

Last night I treated Dave to a wonderful dinner at The Village Inn here in Belgrade. I ordered a split (small bottle) of champagne and we toasted to being alive. I wanted to pay for it to thank him for everything he’s done, and continues to do, for me. He was at the hospital EVERY day I was there. He drove down at 2:00 a.m. one morning after having just left, because I needed him. He got groceries for months after I got home. He drove me back and forth to work until I was able to drive on my own. He cleaned house, did laundry, did dishes and took care of me…and never complained. He’s my angel.

Today we’ll bundle up and take the pontoon boat out for probably our last cruise of the season and enjoy the fresh, cool crisp air and the view. Two years ago it was an ugly room in ICU. I’ll take this one any  day!

Happy Annie-versary to me!