Category: Doctor

Day Two: Post-Clipping

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Saturday arrived with an actually quiet 608 ward….at least at 1 a.m. The lady next door soon started her crying jags and feeling like people were leaving her there to day and called the head nurse a witch. Although I understand how the mental issues can effect you because I had that in 2006, it was entertaining and annoying this time when I really needed some sleep. It went on for hours.

I did get some sleep…some more pills…some more ice packs for my face, but was feeling stronger. On one of my trips to the bathroom, I sat in the chair looking out at the night lights of the Portland skyline and started working on the blog. Takes awhile to get it all out, but it’s important for me to record it and to let other’s now how the procedure went for me anyway.

Dave went home last night and called in early this morning, but the shift change had just happened and the new nurse hadn’t even had a chance to introduce herself to me yet.

I ordered a little bit more for breakfast, but OH, was it lousy. LOL Egg omelet was like two sheets of egg with some kind of cheese in it and I had one slice of toast, but kind of forgot about my jaw and had a hell of a time eating it. Fruit cup helped…and of course all of the pills.

Thankfully when Dave came he got me some good tea from the cafeteria and a chewy chocolate chip cookie. Ahhhh….

One of the neuro team visited me this morning and ran some neuro tests. Said the swelling in my face and eyes looked “great” and that it’s very normal for them to see. So I guess that’s good. He did indicate I needed to walk more. So as soon as I drank my tea, Dave and I set out for a walk again and did 7 laps. While doing the walking, the neuro dr. was also still on that floor so he was able to see me and how stable I was….even with the walker.

As we were waiting to see if I was going to order lunch, one of the PA’s from Dr. Ecker’s office visited and asked if I wanted to go home today? Well….ummm…yes, please!!! Really??? Yes! It was right around noon and I thought for sure it would take hours to get the discharge papers and everything together, but it probably took less than a half an hour.

They gave me discharge papers and scripts for the drugs I needed. I had the IV ports removed and was ready to go! Changed into my clothes (goody hospital gown!) and realized both of my feet were very swollen. I looked like crap, but my Scotland hat fit nicely over the incision at an angel and loosened up significantly.

It was also snowing significantly! Goody. We said good bye and I was wheeled out into the hallway for “pick up” to go down to the lobby. Dave went to get the car and I got shuttled down to lobby and into the car. We stopped at McDonalds for a big, fat strawberry milkshake that hit the spot perfectly and headed on our way home.

I was extremely tired by the time we got home and my face and head were burning. The nurse at hospital let me bring home my dirty ice bag, so Dave filled that up, I immediately change into my comfy thermal jammies, climbed into bed, called my mom and probably took a nice, long, much-needed four-hour nap!! Felt great. Can’t wait until I can shower on Monday.

Dave cooked me some scrambled eggs for dinner and I took my pills. So glad, and so lucky to be home. Now I just need to take care of myself and listen to my sore, aching face, head, and body. Let the recovery begin!

 

Clipping a Brain Aneurysm

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Dave and I both admitted to each other on the drive to Portland that we were both scared last night. We were scared something would go wrong during surgery and I would not be the same afterwards. As a result I would regret making the decision. Well…as it turns out it was one of the best decisions I’ve ever made.

We also both admitted our fears were completely resolved when Dr. Ecker walked into to the pre-op prep room and explained the procedure again. He just oozes confidence. Hower, he mentioned the size and location of the incision and THAT was news. He told us in September the size of the location he opened the skull, but not the size of the skin incision. THAT was much larger and something Dave and I should have though about but never did.

They quickly put me under when I got into operating room, so I didn’t get much of a chance to see either doctor or explore this operating theatre. Previously I had only been in radiology.

The actual procedure only took about and hour and a half instead of the 4-5 hours we were warned about.

I woke up to Dave standing over me and I was already correcting him and Dr. Ecker told me it was a huge success and they he able to place the clip in a perfect spot. He also informed me that the top of the aneurysm was very thin walled…we may have dodged a bullet with this one.

I was taken to the lovely 6o8 neuro ward. The staff is great…the atmosphere is not. I got no sleep and then became very nauseous over night as well. Twas a long night.

My head was hurting pretty bad and my jaw was quite painful. I learned the next morning they had to cut my jaw muscle. Goody!

I also got the first look at my incision. Wow! It’s big and ugly with 53 stitches in the outer skin.

Clipping Day has Arrived!

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So, here I am at 5 a.m. ready to head down to the hospital for my brain aneurysm clipping today. I have my Care Bear (part of my “Get-Better-Bear” collection) who is wearing the angel necklace made and given to me by Kim.

I know there are two (Kim & Dori), now three (Rhonda), very special angels watching over me today. Wish me luck! And hopefully I’ll be posting more blog entries soon.

Today’s Top Story

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Now that my family, closest friends, and co-workers know, I can let others know about my aneurysm news. I’m going to have my 2nd aneurysm clipped in January.

I found out in April, 2013, right before we left for Scotland, that my 2nd smaller aneurysm was actually visible on the original scans done in 2006 during my rupture of the other, larger aneurysm, but it was never mentioned to me in those immediate checkups with my old doctor. My current doctor indicated he felt we should start thinking about doing something about it. That scared me and certainly gave me pause about our trip to Scotland. Well..it was more like denial that anything was wrong. I was going to Scotland, dammit. Which we did!

The doctor said his office would call when we got back to discuss my options. They did call in June, but I wasn’t prepared to discuss it just yet.

Then, after our annual walk and run for Brain Aneurysm Awareness in September, I met some fabulous survivors and it gave me the strength to make a decision, so Dave and I met with the doctor at the end of September and the decision was made to proceed with clipping.

Several factors with regards to MY aneurysm and history, made that decision easier. I guess:

  • I have a family history
  • I have previously ruptured
  • The 2nd aneurysm has grown in the last six years
  • I’m still relatively young
  • I have great health insurance
  • I want to go to Scotland again!

Even though Dave and I are, sadly, quite educated on brain aneurysms and the treatments, we went armed to the meeting with quite a list of questions for the doctor. Dr. Ecker spent about an hour and a half with us and his recommendation was to go with the more physically invasive clipping procedure over the less-invasive endovascular coiling which I have had previously.

When discussing both options, he just had to many “if”s with the coiling and the aneurysm itself is more rectangular in shape than a balloon or bulb, which leads me to believe keeping a coil in the darn thing to begin with would be tough. The doctor agreed clipping would be more durable and stable than coiling in this case.

Since I have already had a compaction issue with my other larger aneurysm, which now has 20 coils, I really didn’t want to have to go through the endless checking and worry with TWO aneurysms now. I’m very confident that clipping is the way to go with this particular brain aneurysm

So, after surviving another catalog at work, I will be making plans for the surgery. It’s nice to HAVE the luxury of planning and a date for the procedure. With a rupture, there is no advanced warning. There is no indication you’ll be bed-ridden for months. There is no warning your family’s life will be changed for ever.

By deciding to DO something about my aneurysm, I AM in control…not the other way around. Of course, I’m scared. It is open brain surgery, but meeting, and knowing other survivors has given me the strength to show this aneurysm who’s the boss. I’m one of the lucky ones because I know I have an aneurysm.

The doctor showed me my brain scans, drew me diagrams and showed me where the incision will be made. They shave just that part of the head, then remove a 2-3″ diameter part of the skull along my hairline around my left eye. They’ll isolate the aneurysm away from the artery and place the clip on it. Then close up the skull. Possibly a 2-night stay in the hospital, then home for a 6-week recovery period. It’s not an emergency situation so the recovery period is far less stressful and difficult, although fatigue will still be an issue.

I feel fine. There are no symptoms that something is wrong, and that’s the whole point of doing something now. Could something go wrong during the procedure? Yes, but the risks of that are far fewer than if I let the aneurysm continue to grow and HAVE to do something about it during a tramatic event. Been there…done that…bought the t-shirt Pedro.