I received a disturbing email from my friend, and fellow annie survivor, Julie, about the miracle man who performed our coiling procedures.
Apparently, he is no longer at Maine Med, or moved to Mass General, or was fired…..we don’t know yet. I dread finding another Dr. I’m so tired of having to go through my history with so many doctors and I trusted Dr. Kwan very much.
I asked Julie to let me know when she found out more.
I had a Dr’s appointment today and the word “Brain” caught my eye on a brochure in the waiting room so I grabbed one. It was a brochure to advertise the Walk For Thought on March 22nd to support the Brain Injury Association of Maine. Something about it just struck me and I wanted to participate in some way.
Well, I had 50 minutes to wait for the Dr., so I decided I’d take the plunge and register for the walk. It’s a 3-5 miles course. I’m not sure I can do the whole thing, at least not without some breaks, but I’m willing to give it a shot to support the kind of programs the the BIAM offer because my recovery could have turned out very different and both Dave and I could have been in great need of their services.
I registered, then sent out some emails to get donations for my walk. I was amazed at the instant generosity by my co-workers. One co-worker reminded me her father had suffered a ruptured brain aneurysm 11 years ago. He’s very different, but he’s alive and is still here for her…others have not been so lucky…so I walk!
I also walk for my cousin Jennifer.
I was doing a search last night on platinum coils and ran across this graphic on the BBCNews.com website from 2005.
I wish I had found this graphic a year ago when I felt like an idiot for asking Dr. Kwan how he got to the left side of my brain from my right groin. LOL A pretty amazing procedure and this is a very simple explanation.
Then it made me think of just how lucky I was that this massive annie didn’t rupture more than it did. How it didn’t rupture during some of the most strenuous and stressed other periods of my life prior to last Oct. is beyond me.
I had an appointment with my neurologist last week. She had wanted to do an MRI on my neck, but the insurance company declined the request, so we had an appointment scheduled. She didn’t seem to think it was needed at this point, which was fine with me.
However, she did address my head and ocular migraine issues and I am now on Verapamil and baby Aspirin daily. She said it’ll take a couple of weeks to really get into my system. So far, no serious side effects, but I did experience a couple days of dizziness and light headedness…all side effects listed.
Then at the end of our appointment, she informed me she was leaving the area. What??? I just found you!! I was so disappointed. I really liked and trusted her and now I have to go through this whole process again and probably won’t be able to find another Dr. within a 40 mile range. I guess there IS one man near by, but there are rumors he is retiring, so I’ll pass.
Heidi's Brain Blog 