Check up

This morning, I met with Dr. Kwan, who is actually a neuroradiologist, rather than a neurologist which I have been my mistakingly calling him. He’s a specialist basically, who does coiling.

He had seen my shots from the MRI and MRA from last Tuesday and said things looked very good. I wasn’t even able to find the aneurysm on the MRA images because it had clotted so well, but I sure could on the one MRA image he showed me from the day it happened! WOW! I had no idea it was that large. Very scary especially when I saw how close it was to my left eye and he made a size correction that it was a 11 mm annie, rather than 10 mm. That’s almost a half an inch.

Again, it was located in my left internal carotid artery behind my left eye.

He showed me images taken throughout the surgery where each coil was inserted. Really fascinating stuff. Dr. Kwan was also able to squelch any fears I may have had by answering a lot of questions I’m sure he didn’t have the time to answer, but I’m grateful he at least made the effort.

One of the main questions I had, was how did he get to the LEFT side of my brain from the RIGHT side of my groin.mDr. Kwan begrudgingly drew a diagram…but I found this one as well. Makes sense.

He said the headaches I’m experiencing were still probably being caused by blood reabsorbing into my system and it could go on for months until it completely lets up.

Dr. Kwan said that only something more catastrophic happening would be a signal of a problem with the coiling. So, when I sneeze and it hurts…don’t worry! It may happen for some time yet.

He said to use common sense with getting back into things like housework, driving and work. I need to pace myself and ease my way into it. He said it’s not uncommon for most people to be off work for three months. I’m hoping to get back to work, at least part time from home soon. We’ll see.

Keeping my blood pressure normal is also important as the higher it gets the more the blood is pumped through those
arteries and can cause stress.

Dr. Kwan did NOT recommended any serious neck manipulation, so I’m not sure how that will come in to play with the OMT therapy I’ve been having monthly.

He DID say a beer or glass of wine now and then won’t hurt me, nor will a cup of strong tea or a pot of tea…so that’s good! And he said getting a massage would be good, but with not a lot of neck manipulation.

Overall, I was very pleased with the visit. I still have concerns with other parts of my head, like sinus and migraines, but he basically directed me to go to a neurologist, which I think I will with the help of my regular PCP.

Two MRIs in One Week

Around noon-time yesterday I ate lunch, took a Vicadin and laid down on the couch to possibly sleep!

Shortly after doing so, my thumb and index finger on my right hand went numb. Like I was getting a migraine. Oh, crap! What if I’m getting one…what do I do? Can I take an Excedrin Migraine WITH a Vicadin? I didn’t know. Then, as quickly as they went numb, they regained feeling. Hmm…what was that? I wasn’t having any other migraine symptoms like spots in my eyes or sick to my stomach or horrible head pain.

I did sleep a little. I was going to go get something to eat for dinner and my entire right hand went numb and the right side of my tongue went numb. Then my wrist went numb. What the heck was this? A migraine or not? I just didn’t know and I was concerned only due to the fact it was all on one side and it came and went throughout the afternoon. Of course, due to my aneurysm, I’m thinking stroke!

I tried to get in touch with Dr. D’angelo AND Dr. Kwan’s office, but of course they were both closed for the holiday. Great! I just needed someone to tell me this WASN’T a
stroke…so….off we went to the Augusta ER.

Luckily, no one was there again so I got right in and had to go through the whole story about four darn times.

The first “Dr.”’ to see me was either an intern of some sorts who didn’t speak very good English. Why can’t people learn to speak the language fluently before taking a position like that?
But…that’s another Blog entry!

I did NOT care for her saying “Ummm……..” before every single exam segment. She wasn’t picking out paint chips, she was supposed to be giving me an exam and knowing what she’s doing. If she hadn’t said “Umm….” it wouldn’t have been so bad….I guess.

Finally saw a REAL Dr. and he wanted me to have an MRI. GREAT! Lovely. Can’t wait. Just had one three says ago. The feeling in my hand and tongue had all come back and I was feeling better, but I reluctantly agreed it would be better to know now than wait it out all weekend. He said the MRI unit at that particular hospital is not “available” over the weekend, so I caught it at a good time.

They fed me a sandwich because we’d have about an hour wait and it was also time for some Tylenol, which they also gave me. I hate being back in a hospital again.

At 7:30 I went in. It was a little bit different (older unit I think) than the one in Scarborough, but one NICE thing
was that they let you listen to music of your choice! They put these huge headphones on you and it really dulled the noise. I liked that, but I did not like not having any communication with the person doing the exam, which I did in Scarborough. I got through it fine.

Within probably 10 minutes after the scan, the results were read by “the best radiologist in the hospital” and everything looked good. The Dr. thinks it may have just been a migraine,
but possibly due to the Vicadin, there was no pain. I didn’t really have any other migraine symptoms, so I guess, but I am glad I checked it out and he did confirm it wasn’t stroke related. I just really didn’t know. Dave was convinced
something so isolated wouldn’t be a stroke, but the Dr. said they had a 40 year old woman in last week with numbness in one side of her arm and hip and it WAS a stroke, so I was glad we checked it out. We got home around quarter to 9:00.

I suppose I may go through this for a long time until I hear from Dr. Kwan, what I should and shouldn’t be concerned
about. My list of questions for him are getting much longer!

I’m tired today, but feel okay. I just almost feel a little silly for running in to the ER. I wonder how many other
people who have aneurysms feel that way too when something happens that they’re just not sure if it’s a result of the brain surgery or not.

Set Back

The next day was a step backwards for me. I was sick to my stomach, throwing up and couldn’t eat anything. I was not happy. Had a headache, backache…hadn’t pooped in days. Not good.

ICU

The next four days were spent in UCI at SCU3. I could not get out of bed. I had a catheter, wasn’t eating anything anyway, but had a ton of fluids going through me to flush out any access blood in my system. That blood was the main concern. If I had a spasm or a possible stroke, it could have been far more dangerous, so I was constantly monitored.

Since I was able to do nothing to but sit and think, I THEN started to think about what had just happened to me. Emotions take over quickly as I even have the slightest thought of the life/death issue. My family, my friends, my co-workers and of course Dave. How lucky I was to be here at all. It was almost too much to take, so I’d try to quickly avoid it. I think it WILL hit me the second I get home though.

Emotional issues are also a problem with recovering from a brain injury. Strange things happen, either because of the type of injury or other things. I had strange things happen in the ICU. I knew one room in the ICU was being used to administer last rights to someone during one day and perhaps that made me think of the following.

Considering I’m very isolated in one glass-walled room, it can be quite lonely at night and perhaps my mind just played tricks on me. I saw my co-worker Di. At least I could have sworn it was her. Then I heard, what I believed were, body bags being opened up for people in that room to identify. I heard someone say “Di just threw up”. Then I heard crying, then I heard someone say “what do we do about the wedding ring”? and I heard Di say very strongly, “I’ll take care of the damn ring!”. I heard a woman crying, then when it was all over, the “bodies” were taken away out a back door, the curtains were opened and all was done.

I was so upset. I knew Di’s only daughter was getting married this month. Not that there was anything I could do about it. I was bedridden, but I just really needed to know. I called in the nurse and asked her about it. I was having an anxiety attack for sure. I told her what I thought had happened to my co-worker. She assured me there were no bodies being identified there that night. Of course, I didn’t believe her and the mystery continued. I had no contact with anyone at Johnny’s to ask if something had happened to Di’s family. Frustrating.

It wasn’t until a week later when I finally asked someone at work, that I found out nothing had occurred with Di’s family. THANK GOD it didn’t, but that meant I imagined the entire thing. I still cannot believe that. Very, very odd and very, very real.