And the Stories Continue

Five years ago I wrote, what I contend, is one of my more poignant blog posts about all of THE STORIES I have heard about brain aneurysms. Stories from many different people from all walks of life and at very random times. We heard a new one last week.

As my husband and I were in the pre-op area at the hospital waiting for his colonoscopy to begin, the anesthesiologist came in to speak to Dave prior to the procedure, which is normal. As Ron was talking he noticed the brain aneurysm survivor pin that was on my purse and Dave’s KAT-WALK bracelet and asked who was the survivor.

We proceeded to share my story, which was top of mind for both of us because it was 16 years to that day, that I had suffered my ruptured brain aneurysm. Then sadly, Ron told us HIS story about losing his wife to a ruptured brain aneurysm 12 years ago.

Suddenly Dave and I were no longer patients Ron needed to tend to during his daily routine prior to the procedure, but human beings who had both suffered losses due to this horrible disease. Ron leaned over and rested his elbows on the metal railing of the hospital bed and proceeded to tell us the sad story of his wife, his children’s reactions, the day it happened, the treatments involved at the time, and the tragic outcome.

Obviously, for Dave and I, we could relate to Ron’s pain and the suddenness of losing someone to a rupture brain aneurysm. Ron even mentioned meeting someone else who survived and how that person had survivor’s guilt. I too, have suffered from that.

Dave wears his KAT-Walk hat and bracelet almost daily and I always have my survivor pin on my purse. These pieces of “swag” can result in moving stories of sadness and triumph from complete strangers. Stories we never would have known had they not seen the small trinkets and asked about them.

Five years ago I wrote that blog post because of the anniversary of my sister’s death. This year was the 10th anniversary of her death. 16 years ago last week, I celebrated my annie-versary of my rupture. That is MY story, but there are so many others out there and we continue to realize the importance of sharing them.

Ron congratulated me for surviving multiple times and said I “looked great’, which was very sweet considering he had never met me before and had just shared, what I am sure, was not an easy story to tell. We shared our sympathies with him and thanked him for taking the time to tell us about his wife.

All of these stories are meaningful. All of these stories effect us. And all of these stories get added to the long list of people we have met over the years who have been effected by brain aneurysms.

Happy Annie-Versary

16 years ago today I didn’t know if I’d survive to see another sunset after suffering a rupture brain aneurysm. Tonight I was greeted by this stunning rainbow shard over the water and two cardinals at the feeder. I am blessed. My brain is wicked tired, but I am blessed.

Days of Rest

Eight days after my brain stent placement, I’m doing very well. I went back to work on Tuesday and worked four full days. I did take two 15-minute breaks a day to step away from my computer to sit and close my eyes. It did help.

Thankfully, I didn’t come back to an excess of projects that needed my immediate attention. There was just enough to test my eyes. And it was my eyes that felt it the most. After a couple days of headaches, those eased, but fatigue and eye strain weighed heavily on Friday. Based off previous non-emergency brain procedures, none of this is unexpected.

I went to bed early every night, listening to my brain and body. Sleep was welcome and thankfully my kitties let me sleep in this Saturday morning.

During the week I received two special “Get Well” boxes in the mail from family & friends back in NY. I appreciate that they took the time and spent the money to do something to help in my recovery. Tea, tasty bites, and heart-felt messages remind me I’m not forgotten and I welcome the support.

I won’t know for SURE if the stent is secure and stable for another six months when I’ll have ANOTHER angiogram. In the meantime, I’ll continue to live each day, try to take care of myself, and be careful to avoid any injuries.

As we celebrate Easter tomorrow, I too, celebrate another battle with this brain aneurysm with hope, renewal, and new life with more brain bling.

Day 4 Update

I should have listened to my own advice and learned lessons from previous brain procedures. Rest, rest, and listen to your body. However, I felt a little better yesterday (Sat.) so I did more, which in turn, I am paying for today.

Yesterday my head pain wasn’t as bad, so I tried to wean off the Tylenol. I only ended up taking one all day. But that also meant I:

  • Made my own big breakfast
  • Took a shower
  • Walked (slowly) inside for 15 minutes
  • Lots of blogging, TOO much blogging
  • Sat up watching a lot of TV
  • Put dinner in the oven

I did take a nap or two, but I should have only done one or two of the list above and not all.

Day 4 Update

Overall I’m doing very well 4 days after the flow diverter deployment. That sound like a space vehicle segment. “T-minus four hours to flow diverter deployment.”

Head pain has been hit and miss depending on how much I’m doing. I removed the dressing on the groin incision site yesterday after showering and the plug site looks very good. Not even any bruising, which is great. It is still tender, but getting better. None of that is unexpected.

When I left the hospital on Thursday, I was experiencing some pretty strong abdominal muscular pain. I had no idea where that came from and it made sitting, standing and moving in bed quite painful. Thankfully, it finally feels like that is easing up. I must have had a minor muscle pull that was self-inflicted. I did speak to the Dr’s office about it on Friday.

My balance is still a little wobbly and I’m doing everything very slowly from sitting down, sitting up, turning around and walking. Sudden movements cause a stir and bending over is rough. Everything brings on fatigue.

It has taken me about 5-6 hours to feel decent today as a result of the activities yesterday. Pretty good head pain and discomfort around face, ears, and neck. So it’s back to the two pills of Tylenol every six hours. The good, old-fashioned ice pack I bought is really coming in handy and feels great.

My non-brain related eye injury from the cat isn’t quite as black as it was, but still pretty purple. There is some yellowing on the actual eye ball on my OPPOSITE eye, which I’m a little concerned about, but we’ll see if it’s still there tomorrow. The cut itself is healing nicely.

Please Note: I AM seeing all your comments on Facebook and the blog posts. I just can’t reply to all. I do have to go in and approve many of the comments on WordPress when I see them before they show up. But I wanted you to know I DO see them and I am extremely grateful for all the love , prayers, and support. THANK YOU!!

FYI: These posts are half typed and half using the terrific keyboard dictation feature