Still here

It has been a minute since I last posted and I suppose that’s GOOD news. While I continue to advocated for brain aneurysm awareness whenever, and wherever I can, I am reminded again, about my own brain aneurysm issues.

I had my 2-year MRA check up on December 3rd. The initial “report” available to me online indicated some things remained unchanged, but some new things have developed on the big old original aneurysm that made its presence known in October, 2006 – fifteen years ago.

There is something that HAS changed, but the medical jargon used in the report is beyond me. So I have to wait for the follow-up appointment scheduled for January 4th before I can see the images and discuss what’s going on with my doctor. His extremely brief follow-up notes on the report indicated he wants me to have an angiogram.

I haven’t needed an angiogram since 2016, so I know they see something that needs a closer look. But once you read something like that, you can’t UNREAD it, so the mind starts to race on what exactly it is and how serious it may or may not be.

The fact I haven’t had to have a closer look in five years is certainly discerning and one doesn’t like to read a report with the words “however”, “changes”, and “has developed”. It was this sentence though “…which is highly suggestive of coil compaction and recurrent aneurysm filling…” that hit me hardest.

I’m praying it’s only a small blip and that the angiogram will show it’s nothing to be concerned about. I’ve lived with this “remnant” of blood in the neck of that aneurysm for years. I just hope I’m not doing something that is causing it to “develop”.

Now that I’ve “spoken” about it, hopefully I can forget about it over the holidays until the start of the new year.

I’ll let you all know what’s going on when I know what’s going on. Umm….but Merry Christmas! 🙂

I Am Lit

As I get prepared for my 2-year follow-up MRA this Friday, I was curious to see just how many angiograms and MRA/MRI’s my brain has had since 2006. Thankfully, I was able to get a pretty good handle on that number by simply searching this blog. I was surprised by the number…but not really.

CEREBRAL ANGIOGRAMS

I have had NINE cerebral angiograms which include three treatments that are performed using this same process: my initial coiling, then my stent placement, and recoiling were all performed using angiography.

A Cerebral angiography provides x-ray images of blood vessels in and around the brain, showing abnormalities like brain aneurysms.

PHOTO: John Hopkins Medicine

Typically a catheter is inserted into the femoral artery in the groin and threaded through the circulatory system to the carotid artery where contrast die is injected. A series of images are taken as the contrast agent spreads through the brain’s arterial system, then a second series as it reaches the venous system.

MRA/MRI

I have also had SEVEN MRA/MRI’s. Magnetic resonance angiography–also called a magnetic resonance angiogram or MRA–is a type of MRI that looks specifically at the body’s blood vessels. Unlike an angiogram, which requires inserting a catheter into the body, magnetic resonance angiography is a far less invasive and less painful test.


PHOTO: My brain bling via MRA imaging.

The frequency and type of follow-up procedures I receive hinge on the previous scan showed and what procedure was provided. We’re hoping I can continue just getting MRA’s, but if something unusual shows up, more angiograms may be needed. Angiograms are more invasive and risky, but they are the gold standard for getting the clearest images of my blood vessels.

I am blessed to have had such a great neuro team here in Maine and terrific health insurance coverage through work.

Here’s to more scanxiety.

Two-Year Checkup 2018

I had my two-year MRA last weekend. Another trip down to Scarborough. This time on a Saturday afternoon, which was unusual and nice. Less traffic and great parking! My choice of music was 80’s pop and the whole thing took less than 20 minutes. Bada bing, bada boom. They used a combo of ear plugs and then placed ear phones over that. So, the sound of the MRI machine was significantly muffled. Nice!

It’s amazing how your mind plays with your emotions during that period of waiting. Especially when a potential vacation could be derailed if things have changed dramatically and I was told not to fly. A lot was riding on my brain and it had been a longer stretch of time between checkups.

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So, today I finally got the results back and this report was good. Nothing had changed from two years ago and we’ll do it all again in two years. (2020!) I still have that remnant of blood getting in to the neck of my first brain aneurysm, but the fact it stayed the same is good. Do I think I’m free and clear of ever having any other issues? No, but for now…I’ll take it. And I’m glad I didn’t have to endure ANOTHER angiogram. I’ll have to go back and check out my blog to see just how many I have had since 2006.

I’m still a survivor.

Look out Scotland & Northern Ireland! Here we come!

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