Devastating Couple of Weeks

A few days after Christmas, we received news that Dave’s niece, Kim, had died of a massive ruptured brain aneurysm. It was bad enough we lost her at the all-too young age of 32, but once we found out the cause of death, it threw a level of other issues at me because I too, had suffered a ruptured aneurysm.

Why did mine rupture the way it did and why didn’t I die? Why? Why? Why? All questions one can’t answer. I have my own “whys”, her mother has her own “whys” as do many other people. Like most undetected annies, Kim didn’t know she had it and as far as everyone knew, she was very healthy and living an active, if not stressful, life at the time of her death.

There are so many people who survive ruptures, so many who do not and even the consistent threads that DO link some of these people together such as smokers, hereditary, age, women….aren’t consistent enough for people to instantly know they have an annie. Some smokers who have a history of annies in their families, never get aneurysms, while other families have multiple deaths and ruptures in their families.

It was just the irony of Kim having one when she was not a blood relative of mine and didn’t display any of the so-called “symptoms” that may, or may not, occur from an annie. She did suffer from migraines, but so do millions of other people and they do not have aneurysms, so one can’t say that was a “sign” for sure. My mother had migraines, both my sisters do, my aunt and myself. I’ve had two first cousins with annies and myself.  I wish my sisters and niece would get CTA’s. At least if you KNOW you have one, you have a fighting chance of surviving. If you don’t know you have one, and it ruptures, chances of survival decrease the older you get and obviously, the severity of the rupture, location and size of the aneurysm. So many factors
come in to play and it’s different for every person.

I started to look at it like suffering with an annie was something special and because the brain is effected, it’s just that much more serious than anyone else’s maladies, but truthfully, it’s no different than suffering a catastrophic heart attack or stroke, or being hit by a car. You may, or may not survive. Many are lucky, many are not and trying to figure out the “whys” can eat you alive.

As Dave says…”It is what it is.” and often times we just have to accept what “is” and move on no matter how terribly difficult it can be without those we love beside us.

Also today, I get news that my cousin Jennifer, who had been fighting a brain tumor since 1999 is close to death’s door. How painful it has been to read her brother’s posts on The Caring Bridge website about her battle and how terrible is must be for them to watch her deteriorate and not be able to help her in anyway. I know how helpless one can feel after watching my own father fade away from us for months. Jennifer has been so strong with her battle and always gave others strength. I pray God gives her entire family strength and comfort now as we wait for news.

Clean Up on Aisle Four

I went Christmas shopping this past week. That’s not so unusual. But the last two years since my rupture, I’ve done the majority, if not all, my Christmas shopping online as stores just bother me too much.

I decided to take a chance and save on some shipping and time and go to two stores (Target and Barnes & Noble). I took my time and after six hours and THREE stores, I was home. I didn’t even eat lunch (bad Heidi!) I still had some issue with over-stimulation in some aisles, but once I just got into the rhythm of very deliberately looking at one item, registering it in my brain, the moving on, it went very well. I was by myself, so I didn’t feel any pressure to hurry up or move along and that was the key. I could take my sweet old time and go through one aisle as many times as I wanted to.

Going into Michael’s Craft store was a huge hurdle. The first time I went into that store after my rupture, it was awful. The aisles are very narrow and they’re packed floor to ceiling with oodles of items. I’ve been in a couple of times since and this time it wasn’t too bad. I think I went through the store four times, so getting the lay of the land, as it were, helped.

So, for those of you having problems in stores, it will get better. I rested before I went shopping and made sure I ate a good breakfast. If I try to shop after working all day, it’s usually very, very tiring and disruptive on my brain and eyes. Too much stimulation with colors, shapes and text.

I was pleased after visiting three stores and not having any lunch with how I felt when i got home. The lunch thing wasn’t good, but I was on a roll. I was VERY tired the next day, but not in pain…just dopey. I’ve always taken a day off work in December to go Christmas shopping. I actually enjoy it. Listening to carols and looking at all of the pretty decorations and buying things I know will make my family and friends smile. I still enjoy shopping online better (no parking or lousy sales people to deal with) but for Christmas this is an “outing” for me and I was glad I finally was able to get out there and do it again.

I’m reminded of my post from December, 2006 when just wrapping presents exhausted and frustrated me. I’ve come a long way baby! Merry Christmas!

Follow-Up to Angio

The week of Thanksgiving, I was FINALLY able to spend a little bit of time with Dr. D’angelo and ask him the questions I’ve had written down for several months.

First off, we looked the the most recent angiogram and he indicated everything looked very good. So I was happy to hear what the other Dr. told me after the procedure was correct.

He also informed me I didn’t have to be check again for two years. So November of 2010, I’ll get a CTA with contrast. Then, if something of interest shows up, they’ll do an angiogram. Angiograms still carry a risk of stroke and other items as it’s a far more invasive procedure than a CTA or an MRI. I’m happy with that at this point.

Dr. D’angelo also said I was at no more of a risk of stroke than before the annie. Again, glad to hear that. I’m in good health, no blood pressure issues, I don’t smoke so those are all good things in regard to developing another annie. However, with my family history, you never know so I’ll happily get checked out every couple of years to keep myself safe.

2-Year Angiogram Results

I had my 2-year angiogram following procedure yesterday. I have to admit I was nervous because Dr. Kwan wasn’t doing the procedure, but I was soon put at ease when I found out the Dr. that WAS doing my angio, Dr. Thomas Dykes, was the Dr. who did my first angio back on Oct. 5th, 2006 to confirm it was an annie and a rupture prior to my coiling. I felt better after I found that out.

After what occurred during my last angiogram I made sure they did not attempt to use the angio seal/plug this time. They all concurred they would not do the seal. I was glad! So what if I had to lay around for four hours, I wouldn’t have to endure the pain again.

I was exceptionally dopey after this angio though. Perhaps it was just because I was just so tired after a long, long week getting final files to the printer for the catalog. Regardless, all I wanted to do was close my eyes.

Dave, as usual, was my angel and was by my side almost the entire time. I wasn’t nearly as peppy this time, but he helped feed me again, which is tough to do when you have to lay almost flat and he took me out for an M&M McFlurry at McDonalds afterwards, which hit the spot.

The great news is that about two hours after the procedure, Dr. Dykes came and informed me the nothing had changes since the last angiogram and everything looked good!! Just what I wanted to hear. So, now I know all those little annoying headaches I continue to get are just that….annoying headaches due to not eating well, not drinking enough fluids and just overworking my poor little brain.

Even two years later, I know I’m still healing. I’m the only one who knows what I’m still having difficulty with and what I’ve gotten back to full-strength. And, yes, there are still some things.

But this was great news and I’m thrilled. And, as usual, the staff at Maine Medical Center in Portland were fantastic.

I’m still pretty sore in the groin area today, but I knew it was going to be that way and I’m taking care of myself. Taking care of myself…that’s what it’s all about now.