Angiogram Check Up

I had my 1-year angiogram (video) check-up yesterday at Maine Medical Center in Portland to see
how the stent, re-coiling, and small aneurysm were doing. I was a little nervous, but more concerned about experiencing pain at the onset of the procedure than anything else. So, I expressed my concern with everyone who would listen. LOL You’re not put completely “under” because they need you to be semi-awake to participate in the procedure when they ask you to hold your breath or hold completely still at certain times.

I was given some minor meds that made me very, very dopey, but I still felt quite a bit of discomfort in the groin when they started to insert the wire (video). I have to believe this particular area of the artery has endured quite a bit over the last 5 1/2 years with multiple angiograms, coiling, stenting and recoiling. There MUST be some scar tissue or something there that makes this part particularly painful. Once that part was over I did not recall too much pain.

Dr. Ecker uses a much smaller catheter which means the puncture hole is so small that an angio-plug or seal is not needed. Unfortunately, that means one poor member of the procedure team is in charge of putting pressure on my groin until it stops bleeding after the angiogram. LOL Thank you Brian! The plug is painful…you were not.

As usual, the staff in the Radiology department at Maine Med were fantastic. From the main reception area to the medical team involved with the pre- and post-procedures, they’re very professional, fun, and attentive. I recalled several names and faces and they even remembered me too, which is kind of sad! LOL That means I’ve been there enough times for them to recall who I am, even with the number of patients they must see on a daily basis.

While I was being wheeled out of the interventional radiology suite, they informed me that Dr. Ecker was already showing Dave the 3D images that had just been taken. Because my glasses were taken away from me before the procedure, I couldn’t see anything or make out any faces, but I heard Dr. Ecker’s voice and Dave’s and as I was being wheeled by they gave me the good news that preliminarily things looked good! So that was fantastic news.

Another off-shoot of using the thinner catheter is that the stay for the patient at the hospital is much shorter as well. Only two-hours in recovery where I had to keep my right leg still and flat and couldn’t raise my head too high in the bed. MUCH better than 4-6 hours afterwards. Two-hours was very doable. I was able to eat a yummy turkey & cheese sandwich, a bowl of fruit and a cookie with Dave’s help. Difficult to eat half laying down without making a mess or choking, but we did it.

So, we left the hospital around 1:30 and were home shortly before 3. After calling my mom, I promptly went to bed and slept for 3 hours. I’m sore and sleepy today, but overall pretty good.

I’ll have my follow-up, in-office appointment with Dr. Ecker a week after next because he’s on vacation next week. I’m hoping that after closer inspection and comparison with last year’s pictures he doesn’t find anything of interest and that we’ll still be cleared for our trip next month. I think, and know, that if Dr. Ecker had seen anything major yesterday he would have informed us of it at that point. He doesn’t mess around and is a straight shooter, which I like.

It’s Brain Aneurysm Awareness Week

Hello, I’m Heidi and I’m a survivor. I’m one of the lucky ones. The statistics are quite sobering and I am trying to do my part in raising brain aneurysm awareness this week.

A diagnosis of an aneurysm isn’t necessarily a death sentence, nor should it be viewed as a “ticking time bomb”. I would think a person should consider themselves lucky. Lucky that it was discovered. Lucky that they have options. Lucky that THEY have the power to do something and lucky to be alive. The medical procedures available today allow a person to LIVE with an aneurysm, not necessarily die because of one. Those are much better statistics.

Understanding the signs and symptoms (if you have any) as well as diagnosis with early screening are vital to survival.

I have two first cousins who had aneurysms. If I had been more informed to the risks of hereditary aneurysms, I may have found my aneurysm before it ruptured. I now have another aneurysm, but I know so much more as a result of the first one that I have a fighting chance….but only because I survived the initial rupture.

Like I said…I’m one of the lucky ones. Please help us raise awareness.

Bumper Sticker

I had 5 bumper stickers made through CafePress online. They came out great and I finally was able to get out to my messy car and put it on. I’m proud to display the fact I survived my ruptured brain aneurysm and that I’m still LIVING with one.

And if the bumper sticker should happen to spark a conversation with someone who is unaware of brain aneurysms, then all the better.

Knowledge is Power

I have developed gallstones in my gallbladder. Had my first attack a few weeks prior to the Christmas holiday. After watching my diet and making sure I didn’t over-do it with the fat content, I still had another attack. So, the decision to have my gallbladder removed was made and surgery is scheduled for the end of this month.

I had a meeting with my surgeon to discuss the particulars and give him my background. As we were sitting down with one of his associates, she informed us that her uncle had had a ruptured brain aneurysm. Luckily he survived but it gave quite a scare to them all.

He has 12 brothers and sisters and they ALL decided to have themselves checked out to see if they were at risk for aneurysms or possible HAD one. Luckily everyone was annie-free, but another brother found another medical issue that wouldn’t have been discovered had he not had the scan. Now, it’s something they can monitor and treat before it gets too bad that more serious medical procedures would be needed.

Dave and I were both THRILLED that her uncle’s entire family took it upon themselves to get checked. I’ve been unable to get my two older sisters to get scanned. Both are at high risk due to a sibling and two cousins having aneurysms and they’re also both smokers.

I know they’re scared and I know money is an issue as well. BUT the discovery of an unruptured aneurysm is much better than discovering it as it ruptures….I know….I have gone through both. The rupture did not allow me any options and could have not only caused death, but serious brain damage.

The discovery of another aneurysm DOES allow me to have the power to control it somewhat. I now know it’s there and I can work with my Dr. to monitor it and determine a course of action SHOULD it be needed. There’s alway the odds that nothing will have to be done, but at least I know it’s there and I know to get it looked at and monitor it. I don’t live my life in fear of a rupture because as we’re monitoring it, it hasn’t grown considerably and it may never grow, but at least I’M the one watching it and I’M the one who will determine, if the time comes, to have surgery to fix it.

Knowledge is power!! If you, or a loved one has had a ruptured brain aneurysm or has discovered an unruptured one, please get scanned. It could save your life.