So, here I am at 5 a.m. ready to head down to the hospital for my brain aneurysm clipping today. I have my Care Bear (part of my “Get-Better-Bear” collection) who is wearing the angel necklace made and given to me by Kim.
I know there are two (Kim & Dori), now three (Rhonda), very special angels watching over me today. Wish me luck! And hopefully I’ll be posting more blog entries soon.
This is a public service announcement for those who are interested in the brain procedure I’m having done this week.
Many people still don’t quite understand the previous three procedures I had done were not open brain surgery, but were done endovascularly via the main artery, which means the surgeon entered the brain through my groin. I know….strange, huh?
When my larger brain aneurysm ruptured in 2006, they inserted 16 very tiny platinum coils into the aneurysm to fill it and then the blood clots around the coils and basically seals up the aneurysm. The size and shape of the aneurysm lent itself to the less invasive procedure because it’s actually sitting ON my optical nerve and clipping at that time did not seem like a life-saving option.
However, five years later, it was discovered those 16 coils had started to compact and blood was once again starting to enter the aneurysm. As a result, 4 more coils were inserted and a stent was placed at the base of the aneurysm to keep blood flowing past the bottom of the aneurysm and keep the coils in place. So far so good on that one, but all three procedures were done via the groin.
My second, smaller brain aneurysm has grown and it has an odd shape in that it’s more rectangular and coiling didn’t seem to be the more durable option this time. A small titanium clip will be placed across the neck of the aneurysm. Then the aneurysm will be popped and should simply disappear, but it requires opening up the skull, going into the brain, adding the clip and closing my skull back up. A little more involved than the coiling and will require a little longer recovery period.
I found this great website that describes the clipping procedure in a no-nonsense type of way. I think this will really explain the procedure for those who are still confused. ANEURYSM CLIPPING
Then I found this terrific blog post written by a neuro-nurse on what to expect after a craniotomy. This gave me a better sense of what to expect afterwards in the hosptial and she injected some humor, which always helps. WHAT TO EXPECT WHEN YOU’RE EXPECTING A CRANIOTOMY
I will try to keep people updated on my progress and recovery on this blog.
As I have been psyching myself up the last three months for my surgery on the 16th, a sudden and tragic event almost put a stop to the whole process. On January 2nd, I lost my older sister Rhonda to cardiac arrest. I am now an only child and my niece has lost both of her parents in her young lifetime. Only 19 months ago, I lost my other sister Dori. Just too soon…..
Thankfully we all spent a joyful, family Christmas together in New York. I’m so glad I went home, but it doesn’t make it any easier.
After some soul searching, and with the prodding and support from my mother and niece, I am going to go ahead with the surgery. I suppose one can grieve just as easily during recovery. I already have the time slated off from work. I was most worried about putting my family through more stress, but they have assured me that wanted me to take care of ME and move on. Let’s hope that’s the case for all of us.
So, it will be with a heavy heart that I go into my surgery next week. Hoping that this procedure will prevent putting my family through more pain further down the road and Dave and I can continue to LIVE life and enjoy it. As we’re both so well aware…life can be very short. It can be very unfair and it can be a wonderful, beautiful thing as well.
Keep those prayers coming. We’re all going to need them.
Wow, December snuck up on me quickly! Surgery is a little over a month away and I’m starting to get that anxious, nervous feeling…and not in a good way. LOL
One of the advantages of having SCHEDULED surgery is that you’re able to get things taken care of and organized. It has afforded me the time to get projects completed at work and let my co-workers know I will be out. Unlike last time, which left them in a mad scramble for another graphic artist to finish the catalog files. They’ve hired a few more employees who can handle projects for me in my absence. I just hope they’re not TOO good and I’m without a job when I get back.
My family in New York is looking forward to seeing Dave and I over the Christmas holiday. It will be sad and sweet for me all at the same time. The last time I was in NY for Christmas was in 2011. It was the last time I saw my sister Dori before her death 5 months later. I’m hoping it’s a joyous time for us all and not one of sadness or impending doom for my surgery. In my heart I know I’m doing the right thing, but I’m sure for those around me, it’s scary and confusing to understand.
We will enjoy gift giving, singing carols, and the general time together, but I know there will be a twinge in our hearts when we all say goodbye before Dave and I make the 11-hour drive back home.
Then, once we’re back, it’ll be a mad dash cleaning up all of the projects at work and possible buying myself a new bathrobe and some lounge sets for recovery. Might look at some comfy hats too…just not sure what to expect after the surgery. I’ll write down all of my passwords and logins both at home and at work…just in case. Mostly it’s in case I don’t remember them after a few weeks off. LOL
There is only so much I can do, but being given the opportunity to prepare myself and others truly is a blessing. However, it also gives me more time to worry! Let the countdown begin!
