Category: Medical Procedures

The More You Know

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This is a public service announcement for those who are interested in the brain procedure I’m having done this week.

Many people still don’t quite understand the previous three procedures I had done were not open brain surgery, but were done endovascularly via the main artery, which means the surgeon entered the brain through my groin. I know….strange, huh?

When my larger brain aneurysm ruptured in 2006, they inserted 16 very tiny platinum coils into the aneurysm to fill it and then the blood clots around the coils and basically seals up the aneurysm. The size and shape of the aneurysm lent itself to the less invasive procedure because it’s actually sitting ON my optical nerve and clipping at that time did not seem like a life-saving option.

However, five years later, it was discovered those 16 coils had started to compact and blood was once again starting to enter the aneurysm. As a result, 4 more coils were inserted and a stent was placed at the base of the aneurysm to keep blood flowing past the bottom of the aneurysm and keep the coils in place. So far so good on that one, but all three procedures were done via the groin.

My second, smaller brain aneurysm has grown and it has an odd shape in that it’s more rectangular and coiling didn’t seem to be the more durable option this time. A small titanium clip will be placed across the neck of the aneurysm. Then the aneurysm will be popped and should simply disappear, but it requires opening up the skull, going into the brain, adding the clip and closing my skull back up. A little more involved than the coiling and will require a little longer recovery period.

I found this great website that describes the clipping procedure in a no-nonsense type of way. I think this will really explain the procedure for those who are still confused. ANEURYSM CLIPPING

Then I found this terrific blog post written by a neuro-nurse on what to expect after a craniotomy. This gave me a better sense of what to expect afterwards in the hosptial and she injected some humor, which always helps. WHAT TO EXPECT WHEN YOU’RE EXPECTING A CRANIOTOMY

I will try to keep people updated on my progress and recovery on this blog.

Soul Searching

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As I have been psyching myself up the last three months for my surgery on the 16th, a sudden and tragic event almost put a stop to the whole process. On January 2nd, I lost my older sister Rhonda to cardiac arrest. I am now an only child and my niece has lost both of her parents in her young lifetime. Only 19 months ago, I lost my other sister Dori. Just too soon…..

My familyThankfully we all spent a joyful, family Christmas together in New York. I’m so glad I went home, but it doesn’t make it any easier.

After some soul searching, and with the prodding and support from my mother and niece, I am going to go ahead with the surgery. I suppose one can grieve just as easily during recovery. I already have the time slated off from work. I was most worried about putting my family through more stress, but they have assured me that wanted me to take care of ME and move on. Let’s hope that’s the case for all of us.

So, it will be with a heavy heart that I go into my surgery next week. Hoping that this procedure will prevent putting my family through more pain further down the road and Dave and I can continue to LIVE life and enjoy it. As we’re both so well aware…life can be very short. It can be very unfair and it can be a wonderful, beautiful thing as well.

Keep those prayers coming. We’re all going to need them.

It’s December

Published on by heiditeaLeave a comment

Wow, December snuck up on me quickly!  Surgery is a little over a month away and I’m starting to get that anxious, nervous feeling…and not in a good way. LOL

One of the advantages of having SCHEDULED surgery is that you’re able to get things taken care of and organized. It has afforded me the time to get projects completed at work and let my co-workers know I will be out. Unlike last time, which left them in a mad scramble for another graphic artist to finish the catalog files. They’ve hired a few more employees who can handle projects for me in my absence. I just hope they’re not TOO good and I’m without a job when I get back.

My family in New York is looking forward to seeing Dave and I over the Christmas holiday. It will be sad and sweet for me all at the same time. The last time I was in NY for Christmas was in 2011. It was the last time I saw my sister Dori before her death 5 months later. I’m hoping it’s a joyous time for us all and not one of sadness or impending doom for my surgery. In my heart I know I’m doing the right thing, but I’m sure for those around me, it’s scary and confusing to understand.

We will enjoy gift giving, singing carols, and the general time together, but I know there will be a twinge in our hearts when we all say goodbye before Dave and I make the 11-hour drive back home.

Then, once we’re back, it’ll be a mad dash cleaning up all of the projects at work and possible buying myself a new bathrobe and some lounge sets for recovery. Might look at some comfy hats too…just not sure what to expect after the surgery. I’ll write down all of my passwords and logins both at home and at work…just in case. Mostly it’s in case I don’t remember them after a few weeks off. LOL

There is only so much I can do, but being given the opportunity to prepare myself and others truly is a blessing. However, it also gives me more time to worry! Let the countdown begin!

Today’s Top Story

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Now that my family, closest friends, and co-workers know, I can let others know about my aneurysm news. I’m going to have my 2nd aneurysm clipped in January.

I found out in April, 2013, right before we left for Scotland, that my 2nd smaller aneurysm was actually visible on the original scans done in 2006 during my rupture of the other, larger aneurysm, but it was never mentioned to me in those immediate checkups with my old doctor. My current doctor indicated he felt we should start thinking about doing something about it. That scared me and certainly gave me pause about our trip to Scotland. Well..it was more like denial that anything was wrong. I was going to Scotland, dammit. Which we did!

The doctor said his office would call when we got back to discuss my options. They did call in June, but I wasn’t prepared to discuss it just yet.

Then, after our annual walk and run for Brain Aneurysm Awareness in September, I met some fabulous survivors and it gave me the strength to make a decision, so Dave and I met with the doctor at the end of September and the decision was made to proceed with clipping.

Several factors with regards to MY aneurysm and history, made that decision easier. I guess:

  • I have a family history
  • I have previously ruptured
  • The 2nd aneurysm has grown in the last six years
  • I’m still relatively young
  • I have great health insurance
  • I want to go to Scotland again!

Even though Dave and I are, sadly, quite educated on brain aneurysms and the treatments, we went armed to the meeting with quite a list of questions for the doctor. Dr. Ecker spent about an hour and a half with us and his recommendation was to go with the more physically invasive clipping procedure over the less-invasive endovascular coiling which I have had previously.

When discussing both options, he just had to many “if”s with the coiling and the aneurysm itself is more rectangular in shape than a balloon or bulb, which leads me to believe keeping a coil in the darn thing to begin with would be tough. The doctor agreed clipping would be more durable and stable than coiling in this case.

Since I have already had a compaction issue with my other larger aneurysm, which now has 20 coils, I really didn’t want to have to go through the endless checking and worry with TWO aneurysms now. I’m very confident that clipping is the way to go with this particular brain aneurysm

So, after surviving another catalog at work, I will be making plans for the surgery. It’s nice to HAVE the luxury of planning and a date for the procedure. With a rupture, there is no advanced warning. There is no indication you’ll be bed-ridden for months. There is no warning your family’s life will be changed for ever.

By deciding to DO something about my aneurysm, I AM in control…not the other way around. Of course, I’m scared. It is open brain surgery, but meeting, and knowing other survivors has given me the strength to show this aneurysm who’s the boss. I’m one of the lucky ones because I know I have an aneurysm.

The doctor showed me my brain scans, drew me diagrams and showed me where the incision will be made. They shave just that part of the head, then remove a 2-3″ diameter part of the skull along my hairline around my left eye. They’ll isolate the aneurysm away from the artery and place the clip on it. Then close up the skull. Possibly a 2-night stay in the hospital, then home for a 6-week recovery period. It’s not an emergency situation so the recovery period is far less stressful and difficult, although fatigue will still be an issue.

I feel fine. There are no symptoms that something is wrong, and that’s the whole point of doing something now. Could something go wrong during the procedure? Yes, but the risks of that are far fewer than if I let the aneurysm continue to grow and HAVE to do something about it during a tramatic event. Been there…done that…bought the t-shirt Pedro.