4-Year Annie Checkup

I had my 4 year MRA checkup on Monday. This time, due to insurance selection, it was at Mid Coast Hospital in Brunswick. I can say they were very efficient, but not so concerned about patient comfort.

I DID get to listen to some 70’s tunes during the xray, so that was nice, but other than, I can’t say they were overly concerned with if I was cold, comfortable, or having any issues. I was cold, uncomfortable and surprised they didn’t have me remove my bra, seeing how it was an underwire and Maine Med always makes me remove it.

Anyway…I won’t get the results back until possibly Dec. 2nd or 3rd when I meet with Dr. Eckert for the first time. Hopefully, everything checks out.

Devastating Couple of Weeks

A few days after Christmas, we received news that Dave’s niece, Kim, had died of a massive ruptured brain aneurysm. It was bad enough we lost her at the all-too young age of 32, but once we found out the cause of death, it threw a level of other issues at me because I too, had suffered a ruptured aneurysm.

Why did mine rupture the way it did and why didn’t I die? Why? Why? Why? All questions one can’t answer. I have my own “whys”, her mother has her own “whys” as do many other people. Like most undetected annies, Kim didn’t know she had it and as far as everyone knew, she was very healthy and living an active, if not stressful, life at the time of her death.

There are so many people who survive ruptures, so many who do not and even the consistent threads that DO link some of these people together such as smokers, hereditary, age, women….aren’t consistent enough for people to instantly know they have an annie. Some smokers who have a history of annies in their families, never get aneurysms, while other families have multiple deaths and ruptures in their families.

It was just the irony of Kim having one when she was not a blood relative of mine and didn’t display any of the so-called “symptoms” that may, or may not, occur from an annie. She did suffer from migraines, but so do millions of other people and they do not have aneurysms, so one can’t say that was a “sign” for sure. My mother had migraines, both my sisters do, my aunt and myself. I’ve had two first cousins with annies and myself.  I wish my sisters and niece would get CTA’s. At least if you KNOW you have one, you have a fighting chance of surviving. If you don’t know you have one, and it ruptures, chances of survival decrease the older you get and obviously, the severity of the rupture, location and size of the aneurysm. So many factors
come in to play and it’s different for every person.

I started to look at it like suffering with an annie was something special and because the brain is effected, it’s just that much more serious than anyone else’s maladies, but truthfully, it’s no different than suffering a catastrophic heart attack or stroke, or being hit by a car. You may, or may not survive. Many are lucky, many are not and trying to figure out the “whys” can eat you alive.

As Dave says…”It is what it is.” and often times we just have to accept what “is” and move on no matter how terribly difficult it can be without those we love beside us.

Also today, I get news that my cousin Jennifer, who had been fighting a brain tumor since 1999 is close to death’s door. How painful it has been to read her brother’s posts on The Caring Bridge website about her battle and how terrible is must be for them to watch her deteriorate and not be able to help her in anyway. I know how helpless one can feel after watching my own father fade away from us for months. Jennifer has been so strong with her battle and always gave others strength. I pray God gives her entire family strength and comfort now as we wait for news.

2-Year Angiogram Results

I had my 2-year angiogram following procedure yesterday. I have to admit I was nervous because Dr. Kwan wasn’t doing the procedure, but I was soon put at ease when I found out the Dr. that WAS doing my angio, Dr. Thomas Dykes, was the Dr. who did my first angio back on Oct. 5th, 2006 to confirm it was an annie and a rupture prior to my coiling. I felt better after I found that out.

After what occurred during my last angiogram I made sure they did not attempt to use the angio seal/plug this time. They all concurred they would not do the seal. I was glad! So what if I had to lay around for four hours, I wouldn’t have to endure the pain again.

I was exceptionally dopey after this angio though. Perhaps it was just because I was just so tired after a long, long week getting final files to the printer for the catalog. Regardless, all I wanted to do was close my eyes.

Dave, as usual, was my angel and was by my side almost the entire time. I wasn’t nearly as peppy this time, but he helped feed me again, which is tough to do when you have to lay almost flat and he took me out for an M&M McFlurry at McDonalds afterwards, which hit the spot.

The great news is that about two hours after the procedure, Dr. Dykes came and informed me the nothing had changes since the last angiogram and everything looked good!! Just what I wanted to hear. So, now I know all those little annoying headaches I continue to get are just that….annoying headaches due to not eating well, not drinking enough fluids and just overworking my poor little brain.

Even two years later, I know I’m still healing. I’m the only one who knows what I’m still having difficulty with and what I’ve gotten back to full-strength. And, yes, there are still some things.

But this was great news and I’m thrilled. And, as usual, the staff at Maine Medical Center in Portland were fantastic.

I’m still pretty sore in the groin area today, but I knew it was going to be that way and I’m taking care of myself. Taking care of myself…that’s what it’s all about now.

Angiogram Scheduled

I was called and told my 2-year angiogram is schedule for next Friday at 10:00 at Maine Medical.

I’m still not sure why I had to have the MRI, but I guess I’ll find out. I don’t know who is going to do the procedure which is making me a tad apprehensive. I knew that Dr. Kwan had saved my life and I felt great comfort in knowing he was going my 6-month angiogram. He also had a nice bedside manner and ease about him.

I’m also concerned about getting my point across about the difficulty Dr. Kwan had in using the angio-seal the last time. I’m not sure he mentioned it in his notes. I hope he did. I’ll continue to mention it and hope they either don’t try it again, or they’ll use a new incision. Dr. Kwan felt I had a lot of scar tissue in the one they used.

So, I’ll be getting final catalog files together next week and waiting all week for this angiogram. So much for a restful week!