Category: Fatigue

Rough & Tumble

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Had very rough Sunday and early Monday morning. Lot of head pain and sciatic pain in lower back. One or the other would be fine thanks.

Then 2 a.m. rolled around and got very sick throwing up which does lovely things to my head. Not sure what triggered that, but after Dave made me a good breakfast this morning and I had good pain meds and a nap so I feel much better. Took a 15 minute walk in the house.

The swelling on my eyes has gone down and I get to bathe my head today FINALLY! Moving too quickly and reading are an issue and I have specific orders on things not to do until I’m off heavy pain pills. That’s fine…I am enjoying the sleep when I can get comfortable enough.

The incision is still swollen and numb in places, but I’m told by Dr. Dave it is healing very well. I had his assistance in the tub this afternoon and it felt great to get cleaned up and marginally wash what’s left of the hair. The only area other than the incision that have bruising are the spots where blood was taken AFTER surgery and the area Dr. Ecker drew on my head for the incision in pre-surgery. Must be some heavy-duty marker he used.

Called my mom to let her know how I was doing and took another much-needed nap. Time for dinner soon and more pain meds. Hoping it all stays down tonight.

One Day: Post-Clipping

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Friday all day was rough. Sick to stomach most of the night until we were able to get it calmed down with drugs. Finally able to eat something and keep it down early Friday morning, but it was only very bland hospital oatmeal and apples sauce. Not a hell of a lot of nourishment, but it stayed down, so that was an accomplishment.

Not able to eat much that requires a lot of chewing due to sore jaw. That was something I wasn’t expecting – cutting the jaw muscle.

Looks like I went 12 rounds with Mike Tyson and he won.

Face is getting a bit more swollen and left eye is starting to close up. Head pain is coming and going. Taking lots of pills, but having trouble getting comfortable in the hospital bed because I have the automatic compression socks on both legs and their wires and weight make it hard to sleep on side. I can only sleep on one side anyway.

The staff in the 608 ward is fantastic as usual. And boy, they have to be a special breed. Two men needed special care in the ware and all the while the older woman next to me was having serious mental issues and cried most of the night and went on and on about how she couldn’t get her coffee until 7 a.m. when breakfast was ordered. Drove me nuts, but nothing I could do about it.

Dr. Ecker visited this morning and did a short exam and said the swelling was completely normal and that he got some great pics of both aneurysms and got all of the 2nd smaller aneurysm with a great clipping job. Love him.

The catheter was taken out at 6 this morning so I now had to get up and walk myself to the bathroom…with a walker. An occupational therapist visited mid-morning and we attempted to go for a walk with my walker, but we didn’t get too far. I was really shaky and just not up for it, as much as I wanted to. With very little food and more drugs in my system, it wasn’t going to happen. She said she’s stop by on Saturday to see how I was doing, so I had my work cut out for me.

Thankfully lunch was coming up and I was feeling good, so I ordered the backed mac and cheese and OH, that was good and hit the spot. Also a fruit cup. All stayed down and in the afternoon Dave and I took a good walk around the floor. Pooped me out, but felt good to get out and up. Had some pretty good head pain today and that required more pain meds.

I had a great dinner…even by hospital standards. Meatloaf and gravy and steamed broccoli and milk. Tasted soooo good and it all stayed down. Dave and I then did 4 laps around the floor, which was great. I felt good, but tired after that and I wasn’t nearly as wobbly as I was this morning. Things were looking up.

Dave, as usual has been my angel getting me GOOD tea from down in the cafeteria instead of the crappy stuff that comes from the kitchen and even some cookies. He stayed overnight in Portland last night and was there very early this morning. I made him go home early because I was tired and it appeared the night nurse tonight wasn’t particularly in the mood for hangers-on who weren’t patients.

Every two to four hours, I’d get my vital statistics taken and they’d do a neurological testing for my vision and balance. I believe I was doing all of those okay. Just needed to get up more. I was still drinking a lot of water which meant I had to get up and go to the bathroom more frequently, which was a pain because I was still hooked up to a few things, an IV tree and vital statistics monitor.

Thankfully, the IV was stopped in the evening, so one less thing hooked up to me.

Day Two: Post-Clipping

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Saturday arrived with an actually quiet 608 ward….at least at 1 a.m. The lady next door soon started her crying jags and feeling like people were leaving her there to day and called the head nurse a witch. Although I understand how the mental issues can effect you because I had that in 2006, it was entertaining and annoying this time when I really needed some sleep. It went on for hours.

I did get some sleep…some more pills…some more ice packs for my face, but was feeling stronger. On one of my trips to the bathroom, I sat in the chair looking out at the night lights of the Portland skyline and started working on the blog. Takes awhile to get it all out, but it’s important for me to record it and to let other’s now how the procedure went for me anyway.

Dave went home last night and called in early this morning, but the shift change had just happened and the new nurse hadn’t even had a chance to introduce herself to me yet.

I ordered a little bit more for breakfast, but OH, was it lousy. LOL Egg omelet was like two sheets of egg with some kind of cheese in it and I had one slice of toast, but kind of forgot about my jaw and had a hell of a time eating it. Fruit cup helped…and of course all of the pills.

Thankfully when Dave came he got me some good tea from the cafeteria and a chewy chocolate chip cookie. Ahhhh….

One of the neuro team visited me this morning and ran some neuro tests. Said the swelling in my face and eyes looked “great” and that it’s very normal for them to see. So I guess that’s good. He did indicate I needed to walk more. So as soon as I drank my tea, Dave and I set out for a walk again and did 7 laps. While doing the walking, the neuro dr. was also still on that floor so he was able to see me and how stable I was….even with the walker.

As we were waiting to see if I was going to order lunch, one of the PA’s from Dr. Ecker’s office visited and asked if I wanted to go home today? Well….ummm…yes, please!!! Really??? Yes! It was right around noon and I thought for sure it would take hours to get the discharge papers and everything together, but it probably took less than a half an hour.

They gave me discharge papers and scripts for the drugs I needed. I had the IV ports removed and was ready to go! Changed into my clothes (goody hospital gown!) and realized both of my feet were very swollen. I looked like crap, but my Scotland hat fit nicely over the incision at an angel and loosened up significantly.

It was also snowing significantly! Goody. We said good bye and I was wheeled out into the hallway for “pick up” to go down to the lobby. Dave went to get the car and I got shuttled down to lobby and into the car. We stopped at McDonalds for a big, fat strawberry milkshake that hit the spot perfectly and headed on our way home.

I was extremely tired by the time we got home and my face and head were burning. The nurse at hospital let me bring home my dirty ice bag, so Dave filled that up, I immediately change into my comfy thermal jammies, climbed into bed, called my mom and probably took a nice, long, much-needed four-hour nap!! Felt great. Can’t wait until I can shower on Monday.

Dave cooked me some scrambled eggs for dinner and I took my pills. So glad, and so lucky to be home. Now I just need to take care of myself and listen to my sore, aching face, head, and body. Let the recovery begin!

 

Clipping a Brain Aneurysm

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Dave and I both admitted to each other on the drive to Portland that we were both scared last night. We were scared something would go wrong during surgery and I would not be the same afterwards. As a result I would regret making the decision. Well…as it turns out it was one of the best decisions I’ve ever made.

We also both admitted our fears were completely resolved when Dr. Ecker walked into to the pre-op prep room and explained the procedure again. He just oozes confidence. Hower, he mentioned the size and location of the incision and THAT was news. He told us in September the size of the location he opened the skull, but not the size of the skin incision. THAT was much larger and something Dave and I should have though about but never did.

They quickly put me under when I got into operating room, so I didn’t get much of a chance to see either doctor or explore this operating theatre. Previously I had only been in radiology.

The actual procedure only took about and hour and a half instead of the 4-5 hours we were warned about.

I woke up to Dave standing over me and I was already correcting him and Dr. Ecker told me it was a huge success and they he able to place the clip in a perfect spot. He also informed me that the top of the aneurysm was very thin walled…we may have dodged a bullet with this one.

I was taken to the lovely 6o8 neuro ward. The staff is great…the atmosphere is not. I got no sleep and then became very nauseous over night as well. Twas a long night.

My head was hurting pretty bad and my jaw was quite painful. I learned the next morning they had to cut my jaw muscle. Goody!

I also got the first look at my incision. Wow! It’s big and ugly with 53 stitches in the outer skin.