Devastating Couple of Weeks

A few days after Christmas, we received news that Dave’s niece, Kim, had died of a massive ruptured brain aneurysm. It was bad enough we lost her at the all-too young age of 32, but once we found out the cause of death, it threw a level of other issues at me because I too, had suffered a ruptured aneurysm.

Why did mine rupture the way it did and why didn’t I die? Why? Why? Why? All questions one can’t answer. I have my own “whys”, her mother has her own “whys” as do many other people. Like most undetected annies, Kim didn’t know she had it and as far as everyone knew, she was very healthy and living an active, if not stressful, life at the time of her death.

There are so many people who survive ruptures, so many who do not and even the consistent threads that DO link some of these people together such as smokers, hereditary, age, women….aren’t consistent enough for people to instantly know they have an annie. Some smokers who have a history of annies in their families, never get aneurysms, while other families have multiple deaths and ruptures in their families.

It was just the irony of Kim having one when she was not a blood relative of mine and didn’t display any of the so-called “symptoms” that may, or may not, occur from an annie. She did suffer from migraines, but so do millions of other people and they do not have aneurysms, so one can’t say that was a “sign” for sure. My mother had migraines, both my sisters do, my aunt and myself. I’ve had two first cousins with annies and myself.  I wish my sisters and niece would get CTA’s. At least if you KNOW you have one, you have a fighting chance of surviving. If you don’t know you have one, and it ruptures, chances of survival decrease the older you get and obviously, the severity of the rupture, location and size of the aneurysm. So many factors
come in to play and it’s different for every person.

I started to look at it like suffering with an annie was something special and because the brain is effected, it’s just that much more serious than anyone else’s maladies, but truthfully, it’s no different than suffering a catastrophic heart attack or stroke, or being hit by a car. You may, or may not survive. Many are lucky, many are not and trying to figure out the “whys” can eat you alive.

As Dave says…”It is what it is.” and often times we just have to accept what “is” and move on no matter how terribly difficult it can be without those we love beside us.

Also today, I get news that my cousin Jennifer, who had been fighting a brain tumor since 1999 is close to death’s door. How painful it has been to read her brother’s posts on The Caring Bridge website about her battle and how terrible is must be for them to watch her deteriorate and not be able to help her in anyway. I know how helpless one can feel after watching my own father fade away from us for months. Jennifer has been so strong with her battle and always gave others strength. I pray God gives her entire family strength and comfort now as we wait for news.

2-Year Annie-Versary Today

Two years ago, my life changed. Thankfully, it changed in a way that allowed me to still be here.

It’s a lovely Fall day here in Maine, just as it was in 2006. But instead of being awakened with horrific pain, I heard a chipmunk chirping outside my window, my Maine man getting his morning coffee and my kitty cats flitting about the house waiting to be fed. Yes, this morning was far better.

Last night I treated Dave to a wonderful dinner at The Village Inn here in Belgrade. I ordered a split (small bottle) of champagne and we toasted to being alive. I wanted to pay for it to thank him for everything he’s done, and continues to do, for me. He was at the hospital EVERY day I was there. He drove down at 2:00 a.m. one morning after having just left, because I needed him. He got groceries for months after I got home. He drove me back and forth to work until I was able to drive on my own. He cleaned house, did laundry, did dishes and took care of me…and never complained. He’s my angel.

Today we’ll bundle up and take the pontoon boat out for probably our last cruise of the season and enjoy the fresh, cool crisp air and the view. Two years ago it was an ugly room in ICU. I’ll take this one any  day!

Happy Annie-versary to me!

It’s Strange

It’s strange…16 months after my rupture, as I’m trying to get to sleep last night, for some reason, I started to think (or perhaps it was dream) of the morning it occurred again. Not a clue why it popped into my head. Perhaps it’s because of those nagging headaches I still get at night or first thing in the morning. Mostly of which, I’m sure are sinus.

Only this time, I wasn’t thinking about what happened here at home as I usually do, or at the hospital, but at work. I don’t recall hearing how Dave let someone know that morning. I think he called in, but don’t now what time, and I couldn’t remember who he called. I have to believe it must have been shocking that morning as people learned of the seriousness of what was happening to me and especially our catalog team as we were zeroing in on finishing up the catalog files to send to them to the printer. Luckily, I had just finished up with the main layout, but I don’t recall if everyone knew that.

It was almost like I was there wandering the halls at work that morning trying to find out what was going on…perhaps I was dreaming. If I wasn’t, I’m worried. LOL

Again, I’m not sure why those thoughts came to be. Perhaps it’s due to my being worried about this year’s catalog. A lot of changes…perhaps a much larger catalog, which means a lot more of my time. A new job title, with some new responsibilities….everything is still a big question mark and I don’t like that. I like to know what’s going on so I can plan and prepare. It’s just who I am. I don’t mind change, but it’s the impending stress that I’m worried about. Stressing about stress! LOL Not a good thing and also not having someone here in Maine to operate, should I need to have something done with my coiling down the road….wow, getting WAY ahead of myself.

Anyway…for those of you reading this, even months and years after your annie and operation, you’ll always think of it and at the strangest time.

The Walk For Thought 2008

We got home around 11:30 on this sunny, but very chilly and very windy day. Needless to say, the walk wasn’t held outside, but inside the massive gym/track facility at Colby College in Waterville.

This event was one of six locations where walks were being held today to benefit programs for the Brain Injury Association of Maine.

There were donuts, fruit, coffee cake, yogurt bars and other assorted goodies waiting for us when we arrived and checked in. I raised over $1,000 so I received a sweatshirt. I was only there wearing one, so I guess I did good! LOL Dave got a t-shirt and we wore them proudly. I raised a total of $1,260.

After some opening announcements and some stretching, we started the trek around the gym with the other 100 or so people who signed up today. A good turn out apparently, compared to years past. And they had a nice brass quartet playing very upbeat tunes during the walk. It sure helped pass the time and they sounded great.

I had to pace myself and keep a steady even pace and no over do it, which I succeeded in doing pretty well. Dave walked with me except for a few times were I let him go and have fun and walk faster. The track is a 1/4 lap within the outside ring of the track. I tried to stay in that lane, but with all the young kids wanting to run instead of walk and other folks, it was tough to stay there. They had a table set up with water and fruit so I did stop at one point for a break and grabbed some water.

In total, I ended up walking 16 laps I think for appox. 4 miles. I’m pretty pleased with that. My inner thigh started to bother me the last few laps, ironically, right where my coils were inserted, and I didn’t want to push it any further. I was limping across the finish line, but happy I did it. Then they served us a nice lunch and we said our goodbyes.

There were a couple of people there in wheelchairs and one with a cane and I thought the one man who got out of his wheelchair and made several laps with a walker did  fantastic job. He had quite the support crew with him as well. From the looks of the banner, some folks were there in memory of a loved one too. I wrote that I was walking for Heidi & Jennifer. I wore the ABTA.org bracelet.

People walked much faster than me and lapped me several times, but I didn’t care. I was lucky to be able to walk the amount I did. I’m VERY tired. My head hurts a little bit, but it’s nothing compared to what so many others are going through. I’m reminded of how short life is and one should enjoy it.