Category: Fatigue

Down Weekend

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Well, after such a good, and busy day on Friday, I think I paid for it dearly on Saturday. It was not a good day. I woke up with a headache, eye problems, some dizziness and even a little bit sick to my stomach.

I felt that way all day. Took two Tylenol with breakfast and just pretty much laid on the couch. I think four loads of laundry, moocho online shopping and the trip to the grocery store on Friday did me in.

Then after I ate dinner, I had shooting pains in my head in the area of the aneurysm. I ended up taking a Vicadin. The first in several weeks. It didn’t help I don’t think…at least not for four hours. I went to bed at 7:30 and was still having the pains around 10:30. I think shortly after 11:00 they finally stopped…or I was so exhausted I finally fell asleep.

It was the most severe pain I had had in awhile and it unnerved me. I know it’s to be expected. The pains started to hit me every 5 to 10 minutes. The frequency decreased, but not the intensity. I moaned out loud a few times mostly because between pains, I’d feel so much better, then BAM!

Then today, I felt better, but not great. I made myself try some yoga and stretching. It felt good I guess. I know
I need to do some more exercising so I don’t become a lazy bum on the couch.

Because the weather was good, Dave and I FINALLY planted my 150 tulips in the raised bed behind the garage. Dave had had to dig the trench and pretty much plant them all, water them….had to do it all and it kind of hit me how depressing it is to not be able to do much right now. I can’t just pick up and run to the store…I can’t drive yet and stores overwhelm me. I don’t like not being able to DO things…especially this time of year. I love Christmas and I know when we (or rather Dave) gets down all the Xmas decorations, I’m going to want to do more, but can’t. It will be a simple Christmas this year I’m sure and I do love to decorate.

Poor Dave. I don’t have anyone near by that I can ask to do those little tasks. He must be getting so sick of me. Especially when I can do some things around the house, but can’t do others. I know I’m frustrated and a little depressed and some PMS is coming in to play, so that’s not helping. There are just so many things I want to do and know I COULD do them before, but need help now. I don’t like being so dependent, but I have to, or I pay the price.

I did it!

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Okay…so it’s not rocket science and didn’t require a tremendous amount of physical exertion, but I made my trip to
the gas station/grocery store. Dave drove and stuck with me in case I started to feel ill and needed to run out. We went in for two things: orange juice and ice cream.

I zeroed in on the ice cream, Dave picked it out, then I walked down to the orange juice. Luckily I kind of had an idea of where they were, so that wasn’t too difficult, but I did start to feel icky. Sick to stomach, eyes funny and headache right smack dab in the middle of my head. I still don’t feel that great, but I did it and was able to go into a store.

We might go back in tomorrow for a short visit again until I can feel better for a longer period of time. Dave may get all of his stocking stuffers this year from the gas station/grocery store! LOL

I know going into a gas station/grocery store isn’t a big deal, but it was to me. Not sure I’m crazy about how I feel at the moment, but I need to continue to get over this issue with stores. I’m depressed it didn’t go better though and disappointed that the short amount of time I was in the store still affected me that way.

It Goes Like This

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My days now go something like this.

I awake around 7:00 with a headache. I get up pretty much only so I can eat breakfast and take a pill…these days only Tylenol thankfully. I only take the Vicadin if it’s a sever headache and haven’t had to do that since last Friday.

I do some things around the house…slowly, usually sitting. Then I lay down or sit down for awhile.

I’ll check my email. I lay down or sit down for awhile.

I do some things around the house…slowly, usually sitting. Then I lay down or sit down for awhile.

I’ll eat lunch. I’ll take a pill again if needed.

I’ll check my email. I lay down or sit down for awhile.

I do some things around the house…slowly, usually sitting. Then I lay down or sit down for awhile.

Either Dave or I will fix supper. We’ll eat supper. I’ll take a pill again if needed.

Then I lay down or sit down for awhile.

I’ll go to bed and take a pill before hand if needed.

Yep, that’s about it. I’m hoping to weed out one of those.
Then I lay down or sit down for awhile. Next week.

Some Ideas

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Yesterday was a rough day. I did far too much the last two days with the trip down for the MRI/MRA and then two visits and the store on Wednesday. I felt horrible Wednesday night and almost all of yesterday with bad headaches, VERY tired and some other lingering effects that I was told the Vicadin may be causing.

My nurse visited yesterday and she may have shed some light on a couple of things. Apparently some of the symptoms I have displayed the last couple of days with the double vision, confused vision, headaches and nausea, may simply be caused by 20 days in the hospital and two weeks as home!

She said it’s quite common for folks who haven’t had a lot of stimulation outside the hospital or home to experience exactly what I did. Even the hair loss. Obviuosly, I’m not washing my hair on a daily basis just yet because it really poops me out, so there will be an accumulative effect on the days I DO wash my hair. Makes far more sense.

I will still ask my Dr. on Tuesday about all of these things and hopefully he can tell me what I should and shouldn’t expect and what is and isn’t related to the surgery, so I won’t freak
out…which I am KIND OF doing until I know better.

I feel better today and hope to get out for some fresh air later as Dave said he’ll let me boss him around in the garden to button it up the for winter. I hope we’re still speaking to one another when we get back in house! LOL

Also, the occupational therapist came yesterday and she gave me some other good advice for everyday-living type of things for therapy.

A lot of people, including all the folks from Health Reach and on the message board, say that with this kind of situation, depression is not uncommon. Great! Just what I need for the
holidays! Hopefully, with the help of my fantastic psychologist, I can avoid that trap.